The term of office of the members of the European Union Committee of Experts on Rare Diseases expired on 26 July 2013.
Therefore on 30th July the Commission adopted its Decision on setting up a Commission expert group on rare diseases and repealing Decision 2009/872/EC (2013/C 219/04). Read Orphanews Editorial dated 17 Aug 2013
This Decision lays down general rules concerning the criteria and procedure for the designation of the members of this group.
The European Commission is now looking to appoint the members of the expert group on rare diseases.
European level patients’ organisations, professional associations, scientific societies and associations producing products or providing services in the field of rare diseases are invited to express their interest and appoint their representatives. N.B. for individuals applying, public health or scientific expertise in the field of rare diseases at EU level is essential.
Both individual experts and other members' representatives should be available for a three year term of office and willing to travel to Luxembourg for regular meetings. Other terms and conditions can be found in the Commission Decision
on the setting up of the rare diseases expert group and in the call for expressions of interest.
Once appointed, the expert group will carry out certain tasks in the field of rare diseases requested by the Commission's services. These tasks can include assisting in drawing up guidelines and recommendations, providing advice on implementing EU actions, monitoring, evaluating and disseminating results of EU and national measures, and international cooperation.
To apply click here