Welcome to OrphaNews!

OrphaNews is the freely available, twice-monthly electronic newsletter of the European Union Committee of Experts on Rare Diseases (formerly the EC Rare Diseases Task Force).

In each new issue, OrphaNews reports the latest developments in the field of rare diseases and orphan drugs, including new syndromes, new genes, basic and clinical research, national and international policy, disease surveillance, clinical trial updates, orphan drug approvals, funding opportunities, ethical, social and legal issues, news from the patient associations, upcoming events, and new publications.

OrphaNews is suited to all sectors of the rare disease and orphan drugs community - including policy makers, scientists, health professionals, patient representatives, geneticists, members of the biopharmaceutical industry and anyone interested in staying informed of important developments and new initiatives in the field of rare diseases and orphan drugs.


 

 
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Go directly to the latest on-line newsletter: 16 April 2014

 

 

 
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Archives


 

2014

1 April 2014 15 March 2014
28 February 2014 20 February 2014
1 February 2014 18 January 2014

2013

31 December 2013 27 November 2013
15 November 2013 29 October 2013
15 October 2013 1 October 2013
17 September 2013 7 September 2013
17 August 2013 2 August 2013
18 July 2013 4 July 2013
20 June 2013 6 June 2013
8 May 2013 22 April 2013
6 April 2013 15 March 2013
28 February 2013 20 February 2013

2012

21 December 2012 21 November 2012
24 October 2012 10 October 2012
21 September 2012 1 September 2012
18 July 2012 4 July 2012
20 June 2012 23 May 2012
18 April 2012 28 March 2012
14 March 2012 29 February 2012
8 February 2012 18 January 2012

2011

21 December 2011 30 November 2011
16 November 2011 19 October 2011
28 September 2011 14 September 2011
3 August 2011 6 July 2011
15 June 2011 1 June 2011
11 May 2011 22 April 2011
30 March 2011 16 March 2011
28 February 2011 9 February 2011
26 January 2011 12 January 2011

2010

15 December 2010 1 December 2010
17 November 2010 20 October 2010
29 September 2010 15 September 2010
4 August 2010 14 July 2010
23 June 2010 2 June 2010
12 May 2010 21 April 2010
7 April 2010 19 March 2010
24 February 2010 3 February 2010

2009

23 December 2009 9 December 2009
25 November 2009 28 October 2009
14 October 2009 30 September 2009
16 September 2009 14 August 2009
29 July 2009 10 July 2009
24 June 2009 10 June 2009
20 May 2009 29 April 2009
8 April 2009 25 March 2009
11 March 2009 28 February 2009
4 February 2009 21 January 2009

2008

24 December 2008 10 December 2008
26 November 2008 29 October 2008
15 October 2008 1 October 2008
17 September 2008 27 August 2008
6 August 2008 8 July 2008
17 June 2008 4 June 2008
21 May 2008 30 April 2008
16 April 2008 2 April 2008
19 March 2008 29 February 2008
13 February 2008 30 January 2008

2007

19 December 2007 5 December 2007
21 November 2007 30 October 2007
10 October 2007 25 September 2007
7 September 2007 17 August 2007
12 July 2007 28 June 2007
14 June 2007 16 May 2007
11 April 2007 28 March 2007
14 March 2007 21 February 2007

2006

21 December 2006 20 November 2006
10 October 2006 8 September 2006
10 July 2006 5 June 2006
5 May 2006 9 April 2006
16 March 2006 17 February 2006

2005

22 December 2005 21 November 2005
20 October 2005 23 September 2005
15 July 2005 15 June 2005