Rare diseases are rare, but
rare disease patients are numerous

Caption : designated centres of expertise =

32 Medical management

Medical management

• • BELGIUM
  • OOST-VLAANDEREN
  • GENT
  • Pediatric Dermatology Clinic - UZGent
  • Ghent University Hospital - UZGent
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Genodermatosis clinic - UZLeuven
  • University Hospitals Leuven
  • More information
• • CANADA
  • Alberta
  • EDMONTON
  • Medical Genetics Clinic - Stollery Children's Hospital - University of Alberta
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • The Prenatal Diagnosis and Medical Genetics Program, Mount Sinai Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics adult clinic
  • Hôpital général de Montréal - Montreal General Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics pediatric clinic
  • Montreal Children's hospital - Hôpital de Montréal pour enfants
  • More information
• • CANADA
  • Québec
  • QUÉBEC
  • Clinique spécialisée de génétique prénatale et de la reproduction
  • CHUQ - (CHUL) Centre hospitalier de l'Université Laval
  • More information
• • CANADA
  • Saskatchewan
  • SASKATOON
  • Division of Medical Genetics - Royal University Hospital
  • More information
• • CANADA
  • Terre-Neuve-et-Labrador
  • ST. JOHN'S
  • Provincial Medical Genetics Program, Eastern Health
  • More information
• • FRANCE
  • AQUITAINE
  • BORDEAUX
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Adults
  • CHU de Bordeaux - Hôpital Saint André
  • More information
• • FRANCE
  • AQUITAINE
  • BORDEAUX
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Children
  • CHU de Bordeaux-GH Pellegrin
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • 
  • Reference centre for rare dermatologic diseases - Adults
  • CHU de Toulouse - Hôpital Larrey
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Children
  • CHU de Toulouse - Hôpital Purpan
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for rare genetic skin diseases
  • CHRU de Lille - Hôpital Claude Huriez
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Genetic cancer-predisposing syndromes clinic
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • DÜSSELDORF
  • Dermatology clinic
  • Universitätsklinikum Düsseldorf
  • More information
• • HUNGARY
  • Észak-Alföld
  • BUDAPEST
  • Rare diseases of the skin clinic
  • Semmelweis University
  • More information
• • ISRAEL
  • ISRAEL
  • TEL AVIV
  • Genetic skin diseases clinic
  • Tel-Aviv Sourasky Medical Center
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • 
  • Centre of Expertise for rare skin diseases
  • Azienda Ospedaliera Universitaria "Federico II"
  • More information
• • ITALY
  • EMILIA ROMAGNA
  • BOLOGNA
  • 
  • Centre of Expertise for rare skin diseases
  • Azienda Ospedaliero Universitaria - Policlinico Sant'Orsola Malpighi
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • Genodermatoses clinic
  • Azienda Ospedaliera S. Camillo-Forlanini
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • Rare skin diseases specialised clinic
  • Istituto Dermopatico dell'Immacolata - IRCCS
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • 
  • Centre of Expertise for rare skin diseases
  • Policlinico Umberto I
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • Rare skin diseases specialized clinic
  • IRCCS Ospedale Maggiore
  • More information
• • ITALY
  • TRENTINO ALTO ADIGE
  • BOLZANO
  • 
  • Centre of Expertise for rare skin diseases
  • Ospedale Centrale di Bolzano
  • More information
• • NETHERLANDS
  • Gelderland
  • NIJMEGEN
  • Hereditary Cancer Centre
  • UMC St Radboud - Universitair Medisch Centrum St Radboud
  • More information
• • NETHERLANDS
  • Limburg
  • MAASTRICHT
  • Clinic for Inherited Skin Disorders
  • AZM - Academisch Ziekenhuis Maastricht
  • More information
• • SPAIN
  • Cataluña
  • ESPLUGUES DE LLOBREGAT
  • Pediatric oncology clinic, specialized in Langerhans cell histiocytosis and hemophagocytic lymphohistiocytosis
  • Hospital Universitari Sant Joan de Déu
  • More information
• • SPAIN
  • Galicia
  • A CORUÑA
  • Rare diseases of the skin clinic
  • Complejo Hospitalario Universitario A Coruña
  • More information
• • SPAIN
  • Galicia
  • SANTIAGO DE COMPOSTELA
  • Pediatric hematology and oncology clinic, specialized in Langerhans cell histiocytosis and hemophagocytic lymphohistiocytosis
  • CHUS - Complejo Hospitalario Universitario de Santiago
  • More information
• • SWITZERLAND
  • Suisse Romande
  • GENÈVE
  • Oncogenetic clinic
  • Hôpitaux Universitaires de Genève - HUG
  • More information
• • SWITZERLAND
  • Suisse Romande
  • SION
  • Oncogenetic clinic
  • Institut Central des Hôpitaux Valaisans (ICHV)
  • More information