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Caption : Designated centres of expertise = Accreditation
Member of an ERN = ERN

AUSTRIA

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

TIROL
INNSBRUCK

Section of Children's Orthopedics
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

AUSTRIA

WIEN
WIEN

Marfan syndrome clinic
Allgemeines Krankenhaus der Stadt Wien

DENMARK

Hovedstaden
COPENHAGEN

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitätsklinikum Freiburg

GERMANY

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

GERMANY

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANY

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

GERMANY

Berlin
BERLIN

Interdisciplinary Marfan clinic
Deutsches Herzzentrum Berlin

GERMANY

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

GERMANY

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

GERMANY

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANY

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANY

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

GERMANY

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

GERMANY

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

HUNGARY

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

HUNGARY

Közép-Magyarország
BUDAPEST

HUNGARY

Közép-Magyarország
BUDAPEST

ITALY

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Specialized clinic for vascular surgery
IRCCS Ospedale Casa Sollievo della Sofferenza

NETHERLANDS

Gelderland
NIJMEGEN

Marfan and Related Disorders Policlinic
Radboudumc - Radboud universitair medisch centrum

NETHERLANDS

Groningen
GRONINGEN

Clinic for Connective Tissue Disorders
UMCG - Universitair Medisch Centrum Groningen

NETHERLANDS

Limburg
MAASTRICHT

Marfan and Related Disorders Clinic
AZM - Academisch Ziekenhuis Maastricht

NETHERLANDS

Noord-Holland
AMSTERDAM

Centre for Marfan Syndrome
AMC - Academisch Medisch Centrum

NETHERLANDS

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

NORWAY

Østlandet
NESODDTANGEN

PORTUGAL

NORTE
PORTO

Marfan syndrome clinic
Centro Materno Infantil do Centro Hospitalar do Porto

SPAIN

Galicia
A CORUÑA

CSUR - National centre of expertise for familial cardiopathies
Complejo Hospitalario Universitario A Coruña

SPAIN

Madrid
MAJADAHONDA

CSUR - National unit of expertise for inherited cardiac diseases
Hospital Universitario Puerta de Hierro - Majadahonda

SWEDEN

Landstinget i Uppsala län
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SWEDEN

Stockholms läns landsting
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska University Hospital - Solna

SWITZERLAND

Suisse Alémanique
BERN

Marfan Clinics
Inselspital

AUSTRIA

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

CANADA

Québec
SAINTE FOY

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCE

ILE-DE-FRANCE
PARIS

Clinic associated to reference centre for hereditary cardiac diseases for Marfan disease
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANY

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for Marfan syndrome and Marfan-related disorders
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALY

LAZIO
ROMA

Centre of Expertise for Marfan syndrome and related disorders
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALY

LOMBARDIA
MILANO

NETHERLANDS

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

SPAIN

Andalucía
MÁLAGA

Marfan and Marfan related-disorders clinic
Hospital Universitario Virgen de la Victoria

SPAIN

Cataluña
BARCELONA

CSUR - National unit of expertise for Marfan syndrome
Hospital Universitari General Vall d'Hebron

SPAIN

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

SPAIN

Madrid
MADRID

Rare genetic cardiac diseases clinic
Fundación Jiménez Díaz

SWITZERLAND

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

UNITED KINGDOM

Greater London
LONDON

Inherited Cardiovascular Diseases Unit
Great Ormond Street Hospital for Children, NHS Foundation Trust

UNITED KINGDOM

Merseyside
LIVERPOOL

ITALY

LIGURIA
PONTEDECIMO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALY

LOMBARDIA
ROZZANO

ITALY

PUGLIA
BARI

Centre of expertise for rare rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

PUGLIA
FOGGIA

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALY

SARDEGNA
CAGLIARI

Centre of Expertise for rare systemic diseases
Ospedale Oncologico "Armando Businco"

ITALY

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Genetique Medicale
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CHU Sherbrooke - Hôpital Fleurimont

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare systemic or rheumatologic diseases
AOU Seconda Università degli Studi di Napoli - Cappella Cangiani

ITALY

CAMPANIA
NAPOLI

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare rheumatologic and systemic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALY

PIEMONTE
TORINO

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALY

PUGLIA
BARI

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

SICILIA
CATANIA

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALY

TOSCANA
FIRENZE

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria Careggi - NEUROFARBA

ITALY

TOSCANA
PISA

Centre of Expertise for rare systemic or rheumatologic diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

SLOVAKIA

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SPAIN

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SWEDEN

Landstinget i Uppsala län
UPPSALA

Clinical Genetics
Akademiska Sjukhuset

SWEDEN

Stockholms läns landsting
STOCKHOLM

Clinical Genetics
Karolinska University Hospital - Clinical Genetics

SWITZERLAND

Suisse Alémanique
ZÜRICH

SWITZERLAND

Suisse Romande
LAUSANNE

Immunology and allergy clinic
Centre Hospitalier Universitaire Vaudois CHUV

UNITED KINGDOM

Greater Manchester
MANCHESTER

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCE

AUVERGNE-RHONE-ALPES
LYON

FRANCE

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
STRASBOURG

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Constitutive site
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Lariboisière

FRANCE

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for rare vascular diseases
IRCCS Ospedale Casa Sollievo della Sofferenza - Polamb. Giovanni Paolo II

POLAND

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SWITZERLAND

Suisse Romande
LAUSANNE

Rare vascular disease clinic
Centre Hospitalier Universitaire Vaudois CHUV