Rare diseases are rare, but
rare disease patients are numerous

Caption : designated centres of expertise =

56 Medical management

Medical management

• • AUSTRIA
  • WIEN
  • WIEN
  • Clinic for phlebology and angiology
  • Allgemeines Krankenhaus
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Clinic for systemic diseases including the vasculitis - UZLeuven
  • University Hospitals Leuven - Gasthuisberg
  • More information
• • CANADA
  • Alberta
  • EDMONTON
  • Medical Genetics Clinic - Stollery Children's Hospital - University of Alberta
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • The Prenatal Diagnosis and Medical Genetics Program, Mount Sinai Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics adult clinic
  • Hôpital général de Montréal - Montreal General Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics pediatric clinic
  • Montreal Children's hospital - Hôpital de Montréal pour enfants
  • More information
• • CANADA
  • Québec
  • QUÉBEC
  • Clinique spécialisée de génétique prénatale et de la reproduction
  • CHUQ - (CHUL) Centre hospitalier de l'Université Laval
  • More information
• • CANADA
  • Québec
  • STE-FOY, QUEBEC
  • Thoracic aorta disease clinic
  • Hôpital Laval
  • More information
• • CANADA
  • Saskatchewan
  • SASKATOON
  • Division of Medical Genetics - Royal University Hospital
  • More information
• • CANADA
  • Terre-Neuve-et-Labrador
  • ST. JOHN'S
  • Provincial Medical Genetics Program, Eastern Health
  • More information
• • FRANCE
  • ALSACE
  • STRASBOURG
  • Competence centre for rare vascular diseases
  • CHU de Strasbourg - Hôpital Civil
  • More information
• • FRANCE
  • AQUITAINE
  • BORDEAUX
  • Competence centre for rare vascular diseases
  • CHU de Bordeaux - Hôpital Saint André
  • More information
• • FRANCE
  • AUVERGNE
  • CLERMONT-FERRAND
  • Competence centre for rare vascular diseases
  • CHU de Clermont Ferrand - Hôpital Gabriel Montpied
  • More information
• • FRANCE
  • BASSE-NORMANDIE
  • CAEN
  • Competence centre for rare vascular diseases
  • CHU de Caen - Hôpital de la Côte de Nacre
  • More information
• • FRANCE
  • BRETAGNE
  • BREST
  • Competence centre for rare vascular diseases
  • CHU de Brest - Hôpital de la Cavale Blanche
  • More information
• • FRANCE
  • CENTRE
  • TOURS
  • Competence centre for rare vascular diseases
  • CHRU de Tours - Hôpital Trousseau
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • 
  • Reference centre for Marfan syndrome (Coordinator: Pr Guillaume JONDEAU)
  • CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for hereditary cardiac diseases
  • CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • 
  • Reference centre for rare vascular diseases (Coordinator: Pr Xavier JEUNEMAITRE)
  • CHU Paris Ouest - Hôpital Européen Georges Pompidou
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for rare vascular diseases (specialised in Aortic valve dysplasia)
  • CHU Paris Ouest - Hôpital Européen Georges Pompidou
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for rare vascular diseases (specialised in Primary lymphedema)
  • Hôpital Cognacq-Jay
  • More information
• • FRANCE
  • LANGUEDOC-ROUSSILLON
  • MONTPELLIER
  • Competence centre for rare vascular diseases
  • CHU de Montpellier - Hôpital Saint-Eloi
  • More information
• • FRANCE
  • LIMOUSIN
  • LIMOGES
  • Competence centre for rare vascular diseases
  • CHU de Limoges - Hôpital Dupuytren
  • More information
• • FRANCE
  • LORRAINE
  • VANDOEUVRE-LES-NANCY
  • Competence centre for rare vascular diseases
  • CHU de Nancy
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • Competence centre for rare vascular diseases
  • CHU de Toulouse - Hôpital Rangueil
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for rare vascular diseases
  • CHRU de Lille - Hôpital Claude Huriez
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • MARSEILLE
  • Competence centre for rare vascular diseases
  • CHU de Marseille - Hôpital de la Timone
  • More information
• • FRANCE
  • RHONE-ALPES
  • BRON
  • Competence centre for rare vascular diseases
  • CHU de Lyon-GH Est - Hôpital Louis Pradel
  • More information
• • FRANCE
  • RHONE-ALPES
  • GRENOBLE
  • Competence centre for rare vascular diseases
  • CHU de Grenoble site Nord - Hôpital Albert Michallon
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Rare genetic cardiac and vascular diseases centre
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Visceral and thorax surgery clinic
  • LMU Klinikum der Universität München - Campus Innenstadt
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Aortic diseases clinic
  • Universitätsklinikum Hamburg-Eppendorf
  • More information
• • GERMANY
  • Hessen
  • FRANKFURT AM MAIN
  • Angiology and hemostaseology clinic
  • Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
  • More information
• • GERMANY
  • Hessen
  • KASSEL
  • Vascular diseases clinic
  • Diakonie-Kliniken Kassel
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BOCHUM-GERTHE
  • Phlebology, angiology and lymphology clinic
  • Kliniken der Ruhr-Universität Bochum im St. Maria-Hilf Krankenhaus
  • More information
• • GERMANY
  • Sachsen-Anhalt
  • HALLE (SAALE)
  • Phlebology clinic
  • Universitätsklinikum Halle (Saale)
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • 
  • Centre of Expertise for rare rheumatologic and systemic diseases
  • Azienda Ospedaliera "A. Cardarelli"
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • 
  • Centre of Expertise for rare rheumatologic and systemic diseases
  • Azienda Ospedaliera Universitaria "Federico II"
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • 
  • Centre of Expertise for rare systemic or rheumatologic diseases
  • Seconda Università degli Studi di Napoli
  • More information
• • ITALY
  • EMILIA ROMAGNA
  • BOLOGNA
  • 
  • Centre of Expertise for Marfan syndrome and Marfan-related disorders
  • Azienda Ospedaliero Universitaria - Policlinico Sant'Orsola Malpighi
  • More information
• • ITALY
  • LOMBARDIA
  • ROZZANO
  • 
  • Centre of Expertise for rare systemic and autoimmune diseases
  • IRCCS Istituto Clinico Humanitas
  • More information
• • ITALY
  • PIEMONTE
  • TORINO
  • 
  • Centre of Expertise for rare systemic or rheumatologic diseases
  • A.O. Città della Salute e della Scienza di Torino - Ospedale Molinette
  • More information
• • ITALY
  • PUGLIA
  • BARI
  • 
  • Centre of Expertise for rare systemic and rheumatologic diseases
  • Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari
  • More information
• • ITALY
  • PUGLIA
  • BARI
  • 
  • Centre of Expertise for rare systemic diseases
  • Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari
  • More information
• • ITALY
  • PUGLIA
  • FOGGIA
  • 
  • Centre of Expertise for rare systemic and rheumatologic diseases
  • Azienda Ospedaliero Universitaria di Foggia
  • More information
• • ITALY
  • PUGLIA
  • SAN GIOVANNI ROTONDO
  • 
  • Centre of expertise for vascular medicine
  • IRCCS Ospedale Casa Sollievo della Sofferenza - Polamb. Giovanni Paolo II
  • More information
• • ITALY
  • SARDEGNA
  • CAGLIARI
  • 
  • Centre of Expertise for rare systemic diseases
  • Ospedale Oncologico "Armando Businco"
  • More information
• • ITALY
  • SICILIA
  • CATANIA
  • 
  • Centre of Expertise for rare systemic or rheumatologic diseases
  • Policlinico Vittorio Emanuele
  • More information
• • ITALY
  • TOSCANA
  • PISA
  • 
  • Centre of Expertise for rare systemic or rheumatologic diseases
  • Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara
  • More information
• • ITALY
  • TRENTINO ALTO ADIGE
  • BOLZANO
  • 
  • Centre of Expertise for vasculitis and rare systemic diseases
  • Ospedale Centrale di Bolzano
  • More information
• • NETHERLANDS
  • Gelderland
  • NIJMEGEN
  • Marfan Clinic
  • UMC St Radboud - Universitair Medisch Centrum St Radboud
  • More information
• • POLAND
  • Kraków
  • CRACOW
  • 
  • Centre for Rare Cardiovascular Diseases
  • John Paul II Hospital
  • More information
• • SPAIN
  • Andalucía
  • MÁLAGA
  • Autoimmune and systemic rare diseases clinic
  • Clínica Reumatológica Dr. Ponce
  • More information
• • SPAIN
  • Cataluña
  • BARCELONA
  • Autoimmune and systemic rare diseases clinic
  • Hospital Clínic de Barcelona
  • More information
• • SPAIN
  • Madrid
  • MADRID
  • Autoimmune and systemic rare diseases clinic
  • Hospital Infantil Universitario la Paz
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • Inherited Cardiovascular Diseases Unit
  • Great Ormond Street Hospital NHS Foundation Trust
  • More information