There is no disease so rare
that it does not deserve attention

Caption : designated centres of expertise =

40 Medical management

Medical management

• • BELGIUM
  • OOST-VLAANDEREN
  • GENT
  • Skeletal dysplasia clinic - UZGent
  • Ghent University Hospital - UZGent
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Bone diseases clinic - UZLeuven
  • University Hospitals Leuven - Gasthuisberg
  • More information
• • CANADA
  • Alberta
  • EDMONTON
  • Medical Genetics Clinic - Stollery Children's Hospital - University of Alberta
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • The Prenatal Diagnosis and Medical Genetics Program, Mount Sinai Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics adult clinic
  • Hôpital général de Montréal - Montreal General Hospital
  • More information
• • CANADA
  • Québec
  • MONTRÉAL
  • Medical genetics pediatric clinic
  • Montreal Children's hospital - Hôpital de Montréal pour enfants
  • More information
• • CANADA
  • Québec
  • QUÉBEC
  • Clinique spécialisée de génétique prénatale et de la reproduction
  • CHUQ - (CHUL) Centre hospitalier de l'Université Laval
  • More information
• • CANADA
  • Saskatchewan
  • SASKATOON
  • Division of Medical Genetics - Royal University Hospital
  • More information
• • CANADA
  • Terre-Neuve-et-Labrador
  • ST. JOHN'S
  • Provincial Medical Genetics Program, Eastern Health
  • More information
• • FRANCE
  • ALSACE
  • STRASBOURG
  • Competence centre for constitutional bone diseases
  • CHU de Strasbourg - Hôpital de Hautepierre
  • More information
• • FRANCE
  • AUVERGNE
  • CLERMONT-FERRAND
  • Competence centre for constitutional bone diseases
  • CHU de Clermont-Ferrand - Hôpital d'Estaing
  • More information
• • FRANCE
  • BASSE-NORMANDIE
  • CAEN
  • Competence centre for constitutional bone diseases
  • CHU de Caen - Hôpital de la Côte de Nacre
  • More information
• • FRANCE
  • BRETAGNE
  • RENNES
  • Competence centre for constitutional bone diseases
  • CHU de Rennes - Hôpital Sud
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • 
  • Reference centre for constitutional bone diseases (Coordinator : Dr Martine LE MERRER)
  • CHU Paris - Hôpital Necker - Enfants Malades
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • 
  • Reference centre for constitutional bone diseases (Coordinator : Dr Martine LE MERRER)
  • CHU Paris - Hôpital Necker - Enfants Malades
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for constitutional bone diseases
  • CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for constitutional bone diseases
  • CHU Paris-GH St Louis Lariboisière F.Widal - Hôpital Lariboisière
  • More information
• • FRANCE
  • LANGUEDOC-ROUSSILLON
  • MONTPELLIER
  • Competence centre for constitutional bone diseases
  • CHU de Montpellier - Hôpital Arnaud de Villeneuve
  • More information
• • FRANCE
  • LIMOUSIN
  • LIMOGES
  • Competence centre for constitutional bone diseases
  • CHU de Limoges - Hôpital de la mère et de l'enfant
  • More information
• • FRANCE
  • LORRAINE
  • VANDOEUVRE-LES-NANCY
  • Competence centre for constitutional bone diseases
  • CHU de Nancy
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • Competence centre for constitutional bone diseases
  • CHU de Toulouse
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for constitutional bone diseases
  • CHRU de Lille - Hôpital Jeanne de Flandre
  • More information
• • FRANCE
  • OUTRE-MER
  • SAINT-DENIS
  • Competence centre for constitutional bone diseases
  • CHU de la Réunion - Hôpital Félix Guyon
  • More information
• • FRANCE
  • PAYS DE LA LOIRE
  • NANTES
  • Competence centre for constitutional bone diseases
  • CHU de Nantes - Hôpital Mère-Enfant
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • MARSEILLE
  • Competence centre for constitutional bone diseases
  • CHU de Marseille - Hôpital de la Timone
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • NICE
  • Competence centre for constitutional bone diseases
  • CHU de Nice - Hôpital l'Archet 1
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Genetic skeletal anomalies and short stature clinic
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Baden-Württemberg
  • HEIDELBERG
  • Spine centre: treatment of limb malformations, hip surgery and spine surgery
  • Orthopädische Universitätsklinik Heidelberg
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Osteology clinic
  • Endokrinologikum München
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Skeletal dysplasia clinic
  • Charité - Universitätsmedizin Berlin (CVK)
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Orthopedics clinic
  • AKK Altonaer Kinderkrankenhaus gGmbH
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Osteoporosis and bone diseases clinic
  • Universitätsklinikum Hamburg-Eppendorf
  • More information
• • ITALY
  • EMILIA ROMAGNA
  • BOLOGNA
  • 
  • Centre of Expertise for rare bone diseases
  • Istituti Ortopedici Rizzoli
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • Bone diseases specialized clinic
  • Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
  • More information
• • ITALY
  • PUGLIA
  • RUFFANO
  • Bone diseases anomalies specialized radiology and diagnostic imaging clinic
  • Ars Radiologica srl
  • More information
• • ITALY
  • VENETO
  • VERONA
  • 
  • Centre of expertise for diagnosis and treatment of rare skeletal diseases in childhood
  • Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma
  • More information
• • ROMANIA
  • SIBIU
  • SIBIU
  • Juvenile arthritis and genetic bone diseases clinic
  • Spitalul de Pediatrie Sibiu
  • More information
• • SPAIN
  • Andalucía
  • MÁLAGA
  • Bone diseases clinic
  • Clínica Reumatológica Dr. Ponce
  • More information
• • SPAIN
  • Cataluña
  • BARCELONA
  • Bone diseases clinic
  • Hospital del Mar
  • More information
• • SWITZERLAND
  • Suisse Romande
  • LAUSANNE
  • 
  • Constitutional bone diseases clinic
  • Centre Hospitalier Universitaire Vaudois - CHUV
  • More information