Rare diseases are rare, but
rare disease patients are numerous

Caption : designated centres of expertise =

76 Medical management

Medical management

• • BELGIUM
  • ARRONDISSEMENT BRUSSELS-CAPITAL
  • BRUSSELS
  • Pediatric care for congenital and acquired heart diseases - HUDERF
  • Hôpital Universitaire des Enfants Reine Fabiola - HUDERF
  • More information
• • BELGIUM
  • OOST-VLAANDEREN
  • GENT
  • Raadpleging Genetische hartaandoeningen - UZGent
  • Ghent University Hospital - UZGent
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Clinic for Congenital Heart Diseases (children) - UZLeuven
  • University Hospitals Leuven - Gasthuisberg
  • More information
• • FRANCE
  • ALSACE
  • STRASBOURG
  • Competence centre for complex congenital heart defects
  • CHU de Strasbourg - Hôpital Civil
  • More information
• • FRANCE
  • AQUITAINE
  • PESSAC
  • Competence centre for complex congenital heart defects
  • CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque
  • More information
• • FRANCE
  • AUVERGNE
  • CLERMONT-FERRAND
  • Competence centre for complex congenital heart defects
  • CHU de Clermont Ferrand - Hôpital Gabriel Montpied
  • More information
• • FRANCE
  • BASSE-NORMANDIE
  • CAEN
  • Competence centre for complex congenital heart defects
  • CHU de Caen - Hôpital de la Côte de Nacre
  • More information
• • FRANCE
  • BOURGOGNE
  • DIJON
  • Competence centre for complex congenital heart defects
  • CHU de Dijon - Complexe du Bocage
  • More information
• • FRANCE
  • BRETAGNE
  • RENNES
  • Competence centre for complex congenital heart defects
  • CHU de Rennes - Hôpital Pontchaillou
  • More information
• • FRANCE
  • CENTRE
  • TOURS
  • Competence centre for complex congenital heart defects
  • CHRU de Tours - Hôpital Clocheville
  • More information
• • FRANCE
  • CHAMPAGNE-ARDENNE
  • REIMS
  • Competence centre for complex congenital heart defects
  • CHU de Reims - American Memorial Hospital
  • More information
• • FRANCE
  • HAUTE-NORMANDIE
  • ROUEN
  • Competence centre for complex congenital heart defects
  • CHU de Rouen - Hôpital Charles Nicolle
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • LE PLESSIS-ROBINSON
  • 
  • Reference centre for complex cardiac malformations
  • Centre Chirurgical Marie Lannelongue
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • 
  • Reference centre for complex cardiac malformations (Coordinator : Pr Damien BONNET)
  • CHU Paris - Hôpital Necker - Enfants Malades
  • More information
• • FRANCE
  • LANGUEDOC-ROUSSILLON
  • MONTPELLIER
  • Competence centre for complex congenital heart defects
  • CHU de Montpellier - Hôpital Arnaud de Villeneuve
  • More information
• • FRANCE
  • LORRAINE
  • VANDOEUVRE-LES-NANCY
  • Competence centre for complex congenital heart defects
  • CHU de Nancy
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • Competence centre for complex congenital heart defects
  • CHU de Toulouse
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for complex congenital heart defects
  • CHRU de Lille
  • More information
• • FRANCE
  • OUTRE-MER
  • FORT DE FRANCE
  • Competence centre for complex congenital heart defects
  • CHU de Fort de France, Martinique
  • More information
• • FRANCE
  • OUTRE-MER
  • SAINT-DENIS
  • Competence centre for complex congenital heart defects
  • CHU de la Réunion - Hôpital Félix Guyon
  • More information
• • FRANCE
  • PICARDIE
  • AMIENS
  • Competence centre for complex congenital heart defects
  • CHU d'Amiens - Hôpital Nord
  • More information
• • FRANCE
  • POITOU-CHARENTES
  • LA ROCHELLE
  • Competence centre for complex congenital heart defects
  • Centre hospitalier de la Rochelle
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • MARSEILLE
  • Competence centre for complex congenital heart defects
  • CHU de Marseille - Hôpital de la Timone
  • More information
• • FRANCE
  • RHONE-ALPES
  • BRON
  • Competence centre for complex congenital heart defects
  • CHU de Lyon-GH Est - Hôpital Louis Pradel
  • More information
• • FRANCE
  • RHONE-ALPES
  • GRENOBLE
  • Competence centre for complex congenital heart defects
  • CHU de Grenoble site Nord - Hôpital Albert Michallon
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Rare cardiac diseases and congenital heart malformations centre
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Congenital heart malformations clinic
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Baden-Württemberg
  • HEIDELBERG
  • Congenital heart malformations clinic
  • Universitätsklinikum Heidelberg
  • More information
• • GERMANY
  • Baden-Württemberg
  • STUTTGART
  • Congenital cardiac diseases clinic
  • Klinikum Stuttgart, Standort Olgahospital
  • More information
• • GERMANY
  • Baden-Württemberg
  • TÜBINGEN
  • Cardiology clinic
  • Universitätsklinikum Tübingen
  • More information
• • GERMANY
  • Baden-Württemberg
  • TÜBINGEN
  • Interdisciplinary congenital heart malformations clinic
  • Universitätsklinikum Tübingen
  • More information
• • GERMANY
  • Baden-Württemberg
  • ULM
  • Interdisciplinary clinic for adolescent and adult with congenital heart malformations
  • Universitätsklinikum Ulm
  • More information
• • GERMANY
  • Bayern
  • BAMBERG
  • Adult congenital heart malformations clinic
  • Klinikum Bamberg
  • More information
• • GERMANY
  • Bayern
  • ERLANGEN
  • Congenital heart malformations clinic
  • Universitätsklinikum Erlangen
  • More information
• • GERMANY
  • Bayern
  • LANDSHUT
  • Congenital and acquired cardiac diseases clinic
  • Kinderkrankenhaus St. Marien
  • More information
• • GERMANY
  • Bayern
  • LANDSHUT
  • Congenital heart malformations clinic
  • Kinderkrankenhaus St. Marien
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Congenital heart malformations clinic
  • Deutsches Herzzentrum München
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Congenital cardiac rythm defects/malformations clinic
  • Deutsches Herzzentrum München
  • More information
• • GERMANY
  • Bayern
  • WÜRZBURG
  • Cardiology clinic
  • Universitätsklinikum Würzburg
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Congenital heart malformations clinic
  • Charité - Universitätsmedizin Berlin (CVK)
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Adult congenital heart malformations competence centre
  • Deutsches Herzzentrum Berlin
  • More information
• • GERMANY
  • Bremen
  • BREMEN
  • Congenital heart malformations clinic
  • Klinikum Links der Weser gGmbH
  • More information
• • GERMANY
  • Bremen
  • BREMEN
  • Rare cardiac diseases clinic
  • Klinikum Links der Weser gGmbH
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Congenital heart malformations clinic
  • Universitätsklinikum Hamburg-Eppendorf
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Congenital and acquired cardiac diseases clinic clinic for children and adolescents
  • Universitätsklinikum Hamburg-Eppendorf
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Congenital heart malformations clinic
  • Universitätsklinikum Hamburg-Eppendorf
  • More information
• • GERMANY
  • Hessen
  • GIEßEN
  • Cardiology and congenital heart malformations clinic
  • Universitätsklinikum Gießen und Marburg GmbH, Standort Gießen
  • More information
• • GERMANY
  • Mecklenburg-Vorpommern
  • ROSTOCK
  • Congenital heart malformations clinic
  • Universitätsklinikum Rostock
  • More information
• • GERMANY
  • Niedersachsen
  • GÖTTINGEN
  • Adolescents and adults congenital heart malformations clinic
  • Universitätsmedizin Göttingen
  • More information
• • GERMANY
  • Niedersachsen
  • HANNOVER
  • Cardiac malformations clinic
  • Medizinische Hochschule Hannover
  • More information
• • GERMANY
  • Niedersachsen
  • HANNOVER
  • Cardiology and congenital heart malformations clinic
  • Medizinische Hochschule Hannover
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • AACHEN
  • Congenital heart malformations clinic
  • Universitätsklinikum Aachen
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BAD OEYNHAUSEN
  • Interdisciplinary adult congenital cardiac malformations clinic
  • Ruhr-Universität Bochum
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BAD OEYNHAUSEN
  • Congenital heart malformations clinic
  • Ruhr-Universität Bochum
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BIELEFELD
  • Congenital heart malformations clinic
  • Evangelisches Krankenhaus Bielefeld - Kinderzentrum Bethel
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BONN
  • Congenital heart malformations clinic
  • Universitätsklinikum Bonn
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BONN
  • Adult congenital heart malformations clinic
  • Universitätsklinikum Bonn
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • DÜSSELDORF
  • Congenital heart malformations clinic
  • Universitätsklinikum Düsseldorf
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • KÖLN
  • Congenital heart malformations clinic
  • Universitätsklinikum Köln
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • KÖLN
  • Congenital heart malformations clinic
  • Universitätsklinikum Köln
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • MÜNSTER
  • Genetic cardiac diseases clinic
  • Universitätsklinikum Münster
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • MÜNSTER
  • Congenital heart malformations clinic
  • Universitätsklinikum Münster
  • More information
• • GERMANY
  • Rheinland-Pfalz
  • MAINZ
  • Congenital heart malformations clinic
  • Universitätsmedizin Mainz
  • More information
• • GERMANY
  • Saarland
  • HOMBURG
  • Interdisciplinary cardiology clinic
  • Universitätsklinikum des Saarlandes
  • More information
• • GERMANY
  • Saarland
  • HOMBURG
  • Interdisciplinary congenital heart malformations clinic
  • Universitätsklinikum des Saarlandes
  • More information
• • GERMANY
  • Sachsen
  • LEIPZIG
  • Congenital heart malformations clinic
  • Herzzentrum Leipzig GmbH
  • More information
• • GERMANY
  • Schleswig-Holstein
  • KIEL
  • Congenital heart malformations clinic
  • Universitätsklinikum Schleswig-Holstein - Campus Kiel
  • More information
• • IRELAND
  • County Cork
  • CORK
  • Paediatric Department
  • Cork University Hospital
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • Specialized clinic for HHT and pulmonary hypertension
  • IRCCS Ospedale Pediatrico Bambino Gesù
  • More information
• • POLAND
  • Kraków
  • CRACOW
  • 
  • Centre for Rare Cardiovascular Diseases
  • John Paul II Hospital
  • More information
• • POLAND
  • Poznan
  • POZNAN
  • Congenital heart malformations clinic
  • Uniwersytet Medyczny im. Karola Marcinkowskiego
  • More information
• • POLAND
  • Warszawa
  • WARSAW
  • Congenital malformation surgical clinic
  • Warszawski Uniwersytet Medyczny - Medical University of Warsaw
  • More information
• • ROMANIA
  • IASI
  • IASI
  • Clinic for congenital heart malformation, Marfan syndrome, Williams syndrome, fetal alcohol syndrome
  • Spitalul Clinic de Urgente pentru Copii 'Sfanta Maria'
  • More information
• • SWITZERLAND
  • Suisse Romande
  • GENÈVE
  • Paediatric congenital heart malformations clinic
  • Hôpital des Enfants - Hôpitaux Universitaires de Genève
  • More information
• • SWITZERLAND
  • Suisse Romande
  • GENÈVE
  • Adult congenital heart malformations clinic
  • Hôpitaux Universitaires de Genève - HUG
  • More information
• • SWITZERLAND
  • Suisse Romande
  • LAUSANNE
  • Adult congenital heart malformations clinic
  • Centre Hospitalier Universitaire Vaudois (CHUV)
  • More information