Rare diseases are rare, but
rare disease patients are numerous

Caption : designated centres of expertise =

95 Medical management

Medical management

• • BELGIUM
  • OOST-VLAANDEREN
  • GENT
  • Pediatric Dermatology Clinic - UZGent
  • Ghent University Hospital - UZGent
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Epidermolysis bullosa multidisciplinary centre - UZLeuven
  • University Hospitals Leuven
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • LEUVEN
  • Genodermatosis clinic - UZLeuven
  • University Hospitals Leuven
  • More information
• • ESTONIA
  • Tartu
  • TARTU
  • Dermatology clinic
  • Tartu University Hospital
  • More information
• • FRANCE
  • ALSACE
  • STRASBOURG
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Strasbourg - Hôpital Civil
  • More information
• • FRANCE
  • AQUITAINE
  • BORDEAUX
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Adults
  • CHU de Bordeaux - Hôpital Saint André
  • More information
• • FRANCE
  • AQUITAINE
  • BORDEAUX
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Children
  • CHU de Bordeaux-GH Pellegrin
  • More information
• • FRANCE
  • AQUITAINE
  • PESSAC
  • Competence centre for autoimmune bullous diseases
  • CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque
  • More information
• • FRANCE
  • AUVERGNE
  • CLERMONT-FERRAND
  • Competence centre for autoimmune bullous diseases
  • CHU de Clermont-Ferrand - Hôpital d'Estaing
  • More information
• • FRANCE
  • BRETAGNE
  • BREST
  • Competence centre for autoimmune bullous dermatoses
  • CHRU de Brest - Hôpital Morvan
  • More information
• • FRANCE
  • CENTRE
  • TOURS
  • Competence centre for autoimmune bullous diseases
  • CHRU de Tours - Hôpital Trousseau
  • More information
• • FRANCE
  • CHAMPAGNE-ARDENNE
  • REIMS
  • Clinic associated to reference centre for autoimmune bullous diseases
  • CHU de Reims - Hôpital Robert Debré
  • More information
• • FRANCE
  • HAUTE-NORMANDIE
  • ROUEN
  • 
  • Reference centre for autoimmune bullous diseases (Coordinator: Pr Pascal JOLY)
  • CHU de Rouen - Hôpital Charles Nicolle
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • BOBIGNY
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris Seine-Saint-Denis - Hôpital Avicenne
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • BOULOGNE
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • GHU Paris Ile-de-France Ouest - Hôpital Ambroise Paré
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • CRETEIL
  • 
  • Reference centre for acquired toxic and autoimmune bullous dermatoses (Coordinator: Pr Jean-Claude ROUJEAU)
  • GH Henri Mondor
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris Centre - Hôpital Cochin
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris Est - Hôpital Tenon
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Clinic associated to reference centre for acquired toxic and autoimmune bullous dermatoses
  • CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
  • More information
• • FRANCE
  • LANGUEDOC-ROUSSILLON
  • MONTPELLIER
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Montpellier - Hôpital Saint-Eloi
  • More information
• • FRANCE
  • LIMOUSIN
  • LIMOGES
  • Clinic associated to reference centre for autoimmune bullous diseases
  • CHU de Limoges - Hôpital Dupuytren
  • More information
• • FRANCE
  • LORRAINE
  • VANDOEUVRE-LES-NANCY
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Nancy
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • 
  • Reference centre for rare dermatologic diseases - Adults
  • CHU de Toulouse - Hôpital Larrey
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Toulouse - Hôpital Larrey
  • More information
• • FRANCE
  • MIDI-PYRENEES
  • TOULOUSE
  • 
  • Reference centre for rare dermatologic diseases (Coordinator: Pr Alain TAÏEB) - Children
  • CHU de Toulouse - Hôpital Purpan
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for autoimmune bullous diseases
  • CHRU de Lille - Hôpital Claude Huriez
  • More information
• • FRANCE
  • NORD-PAS-DE-CALAIS
  • LILLE
  • Competence centre for rare genetic skin diseases
  • CHRU de Lille - Hôpital Claude Huriez
  • More information
• • FRANCE
  • PAYS DE LA LOIRE
  • NANTES
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Nantes - Hôtel Dieu
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • MARSEILLE
  • Competence centre for autoimmune bullous diseases
  • Hôpital Sainte Marguerite
  • More information
• • FRANCE
  • RHONE-ALPES
  • PIERRE-BENITE
  • Competence centre for autoimmune bullous dermatoses
  • CHU de Lyon Sud
  • More information
• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • Skin autoimmune diseases clinic
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Baden-Württemberg
  • MANNHEIM
  • Autoimmune skin diseases clinic
  • Universitätsklinikum Mannheim
  • More information
• • GERMANY
  • Baden-Württemberg
  • TÜBINGEN
  • Interdisciplinary autoimmune diseases clinic
  • Universitätsklinikum Tübingen
  • More information
• • GERMANY
  • Baden-Württemberg
  • TÜBINGEN
  • Rare skin diseases clinic
  • Universitätsklinikum Tübingen
  • More information
• • GERMANY
  • Baden-Württemberg
  • ULM
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Ulm
  • More information
• • GERMANY
  • Bayern
  • ERLANGEN
  • Skin autoimmune diseases clinic
  • Universitätsklinikum Erlangen
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Autoimmune dermatosis clinic
  • Ludwig-Maximilians-Universität München
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Rare and genetic skin diseases clinic
  • Ludwig-Maximilians-Universität München
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • Autoimmune dermatosis clinic
  • Technische Universität München
  • More information
• • GERMANY
  • Bayern
  • WÜRZBURG
  • Autoimmune skin diseases clinic
  • Universitätsklinikum Würzburg
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Dermatology clinic
  • Charité - Universitätsmedizin Berlin (CCM)
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Skin autoimmune diseases clinic
  • Charité - Universitätsmedizin Berlin (CCM)
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Dermatology clinic
  • Katholisches Kinderkrankenhaus Wilhelmstift GmbH
  • More information
• • GERMANY
  • Hessen
  • GIEßEN
  • Autoimmune skin diseases clinic
  • Universitätsklinikum Gießen und Marburg GmbH, Standort Gießen
  • More information
• • GERMANY
  • Hessen
  • MARBURG
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg
  • More information
• • GERMANY
  • Mecklenburg-Vorpommern
  • GREIFSWALD
  • Autoimmune skin diseases clinic
  • Universitätsmedizin Greifswald
  • More information
• • GERMANY
  • Niedersachsen
  • GÖTTINGEN
  • Skin autoimmune diseases clinic
  • Universitätsmedizin Göttingen
  • More information
• • GERMANY
  • Niedersachsen
  • HANNOVER
  • Skin autoimmune diseases clinic
  • Medizinische Hochschule Hannover
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BOCHUM
  • Collagenosis clinic
  • Universitätsklinikum der Ruhr-Universität Bochum
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BONN
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Bonn
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • DÜSSELDORF
  • Dermatology clinic
  • Universitätsklinikum Düsseldorf
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • KÖLN
  • Bullous autoimmune diseases clinic
  • Universitätsklinikum Köln
  • More information
• • GERMANY
  • Rheinland-Pfalz
  • MAINZ
  • Autoimmune dermatosis clinic
  • Universitätsmedizin Mainz
  • More information
• • GERMANY
  • Sachsen
  • DRESDEN
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Carl Gustav Carus an der TU Dresden
  • More information
• • GERMANY
  • Sachsen
  • LEIPZIG
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Leipzig AöR
  • More information
• • GERMANY
  • Sachsen-Anhalt
  • MAGDEBURG
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Magdeburg A.ö.R
  • More information
• • GERMANY
  • Schleswig-Holstein
  • KIEL
  • Interdisciplinary skin autoimmune diseases clinic
  • Universitätsklinikum Schleswig-Holstein - Campus Kiel
  • More information
• • GERMANY
  • Schleswig-Holstein
  • LÜBECK
  • Autoimmune skin diseases clinic
  • Universitätsklinikum Schleswig-Holstein - Campus Lübeck
  • More information
• • GERMANY
  • Thüringen
  • JENA
  • Autoimmune dermatosis clinic
  • Universitätsklinikum Jena
  • More information
• • HUNGARY
  • Észak-Alföld
  • BUDAPEST
  • Multidisciplinary clinic for genodermatosis, epidermolysis bullosa and ichthyosis
  • Semmelweis University
  • More information
• • HUNGARY
  • Észak-Alföld
  • BUDAPEST
  • Rare diseases of the skin clinic
  • Semmelweis University
  • More information
• • HUNGARY
  • Észak-Alföld
  • BUDAPEST
  • Epidermolysis bullosa clinic
  • Semmelweis University
  • More information
• • IRELAND
  • County Dublin
  • DUBLIN
  • Paediatric Multidisciplinary Epidermolysis Bullosa Clinic
  • Our Lady's Children's Hospital
  • More information
• • IRELAND
  • County Dublin
  • DUBLIN
  • Multidisciplinary Epidermolysis Bullosa Clinic for Adults
  • Our Lady's Children's Hospital
  • More information
• • ISRAEL
  • ISRAEL
  • TEL AVIV
  • Genetic skin diseases clinic
  • Tel-Aviv Sourasky Medical Center
  • More information
• • ITALY
  • CALABRIA
  • COSENZA
  • 
  • Centre of Expertise for autoimmune bullous skin diseases
  • Azienda Ospedaliera di Cosenza - P.O. Mariano Santo
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • 
  • Centre of Expertise for rare skin diseases
  • Azienda Ospedaliera Universitaria "Federico II"
  • More information
• • ITALY
  • CAMPANIA
  • NAPOLI
  • Rare bullous autoimmune diseases specialized clinic
  • Azienda Ospedaliera Universitaria "Federico II"
  • More information
• • ITALY
  • EMILIA ROMAGNA
  • BOLOGNA
  • 
  • Centre of Expertise for rare skin diseases
  • Azienda Ospedaliero Universitaria - Policlinico Sant'Orsola Malpighi
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • Genodermatoses clinic
  • Azienda Ospedaliera S. Camillo-Forlanini
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • Rare skin diseases specialised clinic
  • Istituto Dermopatico dell'Immacolata - IRCCS
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • 
  • Centre of Expertise for autoimmune bullous skin diseases
  • Istituto Dermopatico dell'Immacolata - IRCCS
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • 
  • Centre of Expertise for epidermolysis bullosa
  • Policlinico Umberto I
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • 
  • Centre of Expertise for rare skin diseases
  • Policlinico Umberto I
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • Rare skin diseases specialized clinic
  • IRCCS Ospedale Maggiore
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • Epidermolysis bullosa specialized clinic
  • IRCCS Ospedale Maggiore
  • More information
• • ITALY
  • LOMBARDIA
  • PAVIA
  • 
  • Centre of Expertise for autoimmune bullous skin diseases
  • Fondazione IRCCS Policlinico San Matteo
  • More information
• • ITALY
  • PIEMONTE
  • TORINO
  • 
  • Centre of Expertise for rare skin diseases
  • A.O. Città della Salute e della Scienza di Torino - Presidio San Lazzaro
  • More information
• • ITALY
  • PUGLIA
  • BARI
  • 
  • Centre of Expertise for autoimmune bullous skin diseases
  • Policlinico di Bari
  • More information
• • ITALY
  • TRENTINO ALTO ADIGE
  • BOLZANO
  • 
  • Centre of Expertise for rare skin diseases
  • Ospedale Centrale di Bolzano
  • More information
• • NETHERLANDS
  • Groningen
  • GRONINGEN
  • Centre for Blistering Diseases
  • UMCG - Universitair Medisch Centrum Groningen
  • More information
• • NETHERLANDS
  • Limburg
  • MAASTRICHT
  • Clinic for Inherited Skin Disorders
  • AZM - Academisch Ziekenhuis Maastricht
  • More information
• • SPAIN
  • Andalucía
  • SEVILLA
  • Epidermolysis bullosa clinic
  • Área Hospitalaria Hospital Universitario Virgen de la Macarena
  • More information
• • SPAIN
  • Cataluña
  • BARCELONA
  • Epidermolysis bullosa clinic
  • Hospital de la Santa Creu i Sant Pau
  • More information
• • SPAIN
  • Galicia
  • A CORUÑA
  • Rare diseases of the skin clinic
  • Complejo Hospitalario Universitario A Coruña
  • More information
• • SPAIN
  • Madrid
  • MADRID
  • Ampollous autoimmune diseases and eczeme clinic
  • Hospital General Universitario Gregorio Marañón
  • More information
• • SWITZERLAND
  • Suisse Alémanique
  • BERN
  • Epidermolysis Bullosa Clinic
  • Inselspital
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • 
  • Epidermolysis Bullosa NHS Specialised Service
  • Great Ormond Street Hospital NHS Foundation Trust
  • More information
• • UNITED KINGDOM
  • Tyne & Wear
  • NEWCASTLE UPON TYNE
  • Oral autoimmune bullous disease clinic
  • Newcastle Dental Hospital & School
  • More information
• • UNITED KINGDOM
  • Tyne & Wear
  • NEWCASTLE UPON TYNE
  • Skin bullous autoimmune disease clinic
  • Royal Victoria Infirmary
  • More information
• • UNITED KINGDOM
  • West Midlands
  • BIRMINGHAM
  • 
  • Epidermolysis Bullosa NHS Specialised Service (Children)
  • Birmingham Children's Hospital
  • More information
• • UNITED KINGDOM
  • West Midlands
  • BIRMINGHAM
  • Epidermolysis Bullosa clinic, Birmingham Children Hospital (part of the West Midlands Regional Clinical Genetics Service)
  • Birmingham Women's NHS Foundation Trust
  • More information