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Didascalia : Centro di riferimento = Accreditato							
Membro di una ERN = ERN

AUSTRIA

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

TIROL
INNSBRUCK

Section of Children's Orthopedics
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

AUSTRIA

WIEN
WIEN

Marfan syndrome clinic
Allgemeines Krankenhaus der Stadt Wien

DANIMARCA

Hovedstaden
COPENHAGEN

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCIA

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCIA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANIA

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitätsklinikum Freiburg

GERMANIA

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

GERMANIA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

GERMANIA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANIA

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

GERMANIA

Berlin
BERLIN

Interdisciplinary Marfan clinic
Deutsches Herzzentrum Berlin

GERMANIA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANIA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANIA

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

GERMANIA

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

GERMANIA

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANIA

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANIA

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

GERMANIA

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

GERMANIA

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ITALIA

FRIULI VENEZIA GIULIA
UDINE

Centro di Riferimento Regionale per le malattie osteoconnettivali
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Consulenza Specialistica per la chirurgia vascolare
IRCCS Ospedale Casa Sollievo della Sofferenza

NORVEGIA

Østlandet
NESODDTANGEN

PAESI BASSI

Gelderland
NIJMEGEN

Marfan and Related Disorders Policlinic
Radboudumc - Radboud universitair medisch centrum

PAESI BASSI

Groningen
GRONINGEN

Clinic for Connective Tissue Disorders
UMCG - Universitair Medisch Centrum Groningen

PAESI BASSI

Limburg
MAASTRICHT

Marfan and Related Disorders Clinic
AZM - Academisch Ziekenhuis Maastricht

PAESI BASSI

Noord-Holland
AMSTERDAM

Centre for Marfan Syndrome
AMC - Academisch Medisch Centrum

PAESI BASSI

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

PORTOGALLO

NORTE
PORTO

Marfan syndrome clinic
Centro Materno Infantil do Centro Hospitalar do Porto

SPAGNA

Galicia
A CORUÑA

CSUR - National centre of expertise for familial cardiopathies
Complejo Hospitalario Universitario A Coruña

SPAGNA

Madrid
MAJADAHONDA

CSUR - National unit of expertise for inherited cardiac diseases
Hospital Universitario Puerta de Hierro - Majadahonda

SVEZIA

Landstinget i Uppsala län
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SVEZIA

Stockholms läns landsting
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska University Hospital - Solna

SVIZZERA

Suisse Alémanique
BERN

Marfan Clinics
Inselspital

UNGHERIA

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

UNGHERIA

Közép-Magyarország
BUDAPEST

UNGHERIA

Közép-Magyarország
BUDAPEST

AUSTRIA

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

CANADA

Québec
SAINTE FOY

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCIA

ILE-DE-FRANCE
PARIS

Clinic associated to reference centre for hereditary cardiac diseases for Marfan disease
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANIA

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

ITALIA

EMILIA ROMAGNA
BOLOGNA

Centro di Riferimento per la sindrome di Marfan e malattie correlate
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALIA

LAZIO
ROMA

Centro di Riferimento per la sindrome di Marfan e sindromi correlate
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

PAESI BASSI

Noord-Holland
AMSTERDAM

PAESI BASSI

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

REGNO UNITO; GRAN BRETAGNA

Greater London
LONDON

Inherited Cardiovascular Diseases Unit
Great Ormond Street Hospital for Children, NHS Foundation Trust

REGNO UNITO; GRAN BRETAGNA

Merseyside
LIVERPOOL

SPAGNA

Andalucía
MÁLAGA

Marfan and Marfan related-disorders clinic
Hospital Universitario Virgen de la Victoria

SPAGNA

Cataluña
BARCELONA

CSUR - National unit of expertise for Marfan syndrome
Hospital Universitari General Vall d'Hebron

SPAGNA

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

SPAGNA

Madrid
MADRID

Rare genetic cardiac diseases clinic
Fundación Jiménez Díaz

SVIZZERA

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

ITALIA

LIGURIA
PONTEDECIMO

Centro di Riferimento per le vasculiti e malattie sistemiche rare
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALIA

PUGLIA
BARI

Centro di Riferimento per le malattie reumatologiche rare
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIA

PUGLIA
FOGGIA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALIA

SARDEGNA
CAGLIARI

Centro di Riferimento per le malattie sistemiche rare
Ospedale Oncologico "Armando Businco"

ITALIA

TRENTINO ALTO ADIGE
BOLZANO

Centro di Riferimento per le vasculiti e le malattie sistemiche rare
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CHU Sherbrooke - Hôpital Fleurimont

ITALIA

CAMPANIA
NAPOLI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
AOU Seconda Università degli Studi di Napoli - Cappella Cangiani

ITALIA

CAMPANIA
NAPOLI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliera Universitaria "Federico II"

ITALIA

PIEMONTE
TORINO

Centro di Riferimento per le malattie reumatologiche e sistemiche rare pediatriche
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALIA

PUGLIA
BARI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIA

SICILIA
CATANIA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare pediatriche
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALIA

TOSCANA
FIRENZE

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero Universitaria Careggi - NEUROFARBA

ITALIA

TOSCANA
PISA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

REGNO UNITO; GRAN BRETAGNA

Greater Manchester
MANCHESTER

SLOVACCHIA

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SPAGNA

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SVEZIA

Landstinget i Uppsala län
UPPSALA

Clinical Genetics
Akademiska Sjukhuset

SVEZIA

Stockholms läns landsting
STOCKHOLM

Clinical Genetics
Karolinska University Hospital - Clinical Genetics

SVIZZERA

Suisse Alémanique
ZÜRICH

SVIZZERA

Suisse Romande
LAUSANNE

Immunology and allergy clinic
Centre Hospitalier Universitaire Vaudois CHUV

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

FRANCIA

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCIA

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCIA

AUVERGNE-RHONE-ALPES
LYON

FRANCIA

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCIA

CENTRE-VAL DE LOIRE
TOURS

FRANCIA

GRAND-EST
STRASBOURG

FRANCIA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCIA

HAUTS-DE-FRANCE
LILLE

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCIA

ILE-DE-FRANCE
PARIS

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Constitutive site
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Lariboisière

FRANCIA

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCIA

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCIA

NOUVELLE AQUITAINE
LIMOGES

FRANCIA

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCIA

OCCITANIE
TOULOUSE

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Centro di Riferimento per le malattie vascolari rare
IRCCS Ospedale Casa Sollievo della Sofferenza - Polamb. Giovanni Paolo II

POLONIA

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SVIZZERA

Suisse Romande
LAUSANNE

Rare vascular disease clinic
Centre Hospitalier Universitaire Vaudois CHUV