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Titel : Nationaal erkende expertisecentra = Accreditatie
Member of a ERN = ERN

DENEMARKEN

Hovedstaden
COPENHAGEN

DUITSLAND

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitätsklinikum Freiburg

DUITSLAND

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

DUITSLAND

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

DUITSLAND

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

DUITSLAND

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

DUITSLAND

Berlin
BERLIN

Interdisciplinary Marfan clinic
Deutsches Herzzentrum Berlin

DUITSLAND

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

DUITSLAND

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

DUITSLAND

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

DUITSLAND

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

DUITSLAND

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

DUITSLAND

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

DUITSLAND

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

DUITSLAND

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

DUITSLAND

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

FRANKRIJK

AUVERGNE-RHONE-ALPES
BRON

Competence centre for Marfan syndrome
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANKRIJK

BOURGOGNE-FRANCHE-COMTE
DIJON

Competence centre for Marfan syndrome
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANKRIJK

BRETAGNE
RENNES

Competence centre for Marfan syndrome
CHU de Rennes - Hôpital Sud

FRANKRIJK

GRAND-EST
VANDOEUVRE-LÈS-NANCY

Competence centre for Marfan syndrome
CHU de Nancy - Hôpital de Brabois

FRANKRIJK

NOUVELLE AQUITAINE
BORDEAUX

Competence centre for Marfan syndrome
CHU de Bordeaux-GH Pellegrin

FRANKRIJK

OCCITANIE
TOULOUSE

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

HONGARIJE

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

HONGARIJE

Közép-Magyarország
BUDAPEST

HONGARIJE

Közép-Magyarország
BUDAPEST

ITALIË

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIË

PUGLIA
SAN GIOVANNI ROTONDO

Specialized clinic for vascular surgery
IRCCS Ospedale Casa Sollievo della Sofferenza

NEDERLAND

Gelderland
NIJMEGEN

Marfan en Gerelateerde Aandoeningen Polikliniek
Radboudumc - Radboud universitair medisch centrum

NEDERLAND

Groningen
GRONINGEN

Bindweefselpolikliniek
UMCG - Universitair Medisch Centrum Groningen

NEDERLAND

Limburg
MAASTRICHT

Marfan Polikliniek
AZM - Academisch Ziekenhuis Maastricht

NEDERLAND

Noord-Holland
AMSTERDAM

Centrum voor Marfan Syndroom
AMC - Academisch Medisch Centrum

NEDERLAND

Zuid-Holland
LEIDEN

Marfan Polikliniek Leiden
LUMC - Leids Universitair Medisch Centrum

NOORWEGEN

Østlandet
NESODDTANGEN

OOSTENRIJK

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

OOSTENRIJK

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

OOSTENRIJK

TIROL
INNSBRUCK

Section of Children's Orthopedics
Medizinische Universität Innsbruck

OOSTENRIJK

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

OOSTENRIJK

WIEN
WIEN

Marfan syndrome clinic
Allgemeines Krankenhaus der Stadt Wien

PORTUGAL

NORTE
PORTO

Marfan syndrome clinic
Centro Materno Infantil do Centro Hospitalar do Porto

SPANJE

Galicia
A CORUÑA

CSUR - National centre of expertise for familial cardiopathies
Complejo Hospitalario Universitario A Coruña

ZWEDEN

Landstinget i Uppsala län
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

ZWEDEN

Stockholms läns landsting
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska University Hospital - Solna

ZWITSERLAND

Suisse Alémanique
BERN

Marfan Clinics
Inselspital

CANADA

Québec
SAINTE FOY

DUITSLAND

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

FRANKRIJK

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANKRIJK

ILE-DE-FRANCE
PARIS

Clinic associated to reference centre for hereditary cardiac diseases for Marfan disease
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

ITALIË

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for Marfan syndrome and Marfan-related disorders
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALIË

LAZIO
ROMA

Centre of Expertise for Marfan syndrome and related disorders
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALIË

LOMBARDIA
MILANO

NEDERLAND

Noord-Holland
AMSTERDAM

NEDERLAND

Zuid-Holland
ROTTERDAM

Centrum voor Erfelijke Hart- en Vaatafwijkingen
Erasmus MC - Erasmus Medisch Centrum

OOSTENRIJK

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

SPANJE

Andalucía
MÁLAGA

Marfan and Marfan related-disorders clinic
Hospital Universitario Virgen de la Victoria

SPANJE

Cataluña
BARCELONA

CSUR - National unit of expertise for Marfan syndrome
Hospital Universitari General Vall d'Hebron

SPANJE

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

SPANJE

Madrid
MADRID

Rare genetic cardiac diseases clinic
Fundación Jiménez Díaz

VERENIGD KONINKRIJK

Greater London
LONDON

Inherited Cardiovascular Diseases Unit
Great Ormond Street Hospital for Children, NHS Foundation Trust

VERENIGD KONINKRIJK

Merseyside
LIVERPOOL

ZWITSERLAND

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

ITALIË

LIGURIA
PONTEDECIMO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALIË

LOMBARDIA
ROZZANO

ITALIË

PUGLIA
BARI

Centre of expertise for rare rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIË

PUGLIA
FOGGIA

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALIË

SARDEGNA
CAGLIARI

Centre of Expertise for rare systemic diseases
Ospedale Oncologico "Armando Businco"

ITALIË

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CHU Sherbrooke - Hôpital Fleurimont

DUITSLAND

Hessen
KASSEL

Vascular diseases clinic
Diakonie-Kliniken Kassel

DUITSLAND

Nordrhein-Westfalen
BOCHUM

Phlebology, angiology and lymphology clinic
Ruhr-Universität Bochum im St. Maria-Hilf Krankenhaus

DUITSLAND

Nordrhein-Westfalen
MÜNSTER

Vascular diseases clinic
Universitätsklinikum Münster

FRANKRIJK

AUVERGNE-RHONE-ALPES
BRON

Competence centre for rare vascular diseases
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANKRIJK

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Competence centre for rare vascular diseases
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANKRIJK

AUVERGNE-RHONE-ALPES
GRENOBLE

Competence centre for rare vascular diseases
CHU de Grenoble site Nord - Hôpital Albert Michallon

FRANKRIJK

BRETAGNE
BREST

Competence centre for rare vascular diseases
CHU de Brest - Hôpital de la Cavale Blanche

FRANKRIJK

CENTRE-VAL DE LOIRE
TOURS

Competence centre for rare vascular diseases
CHRU de Tours - Hôpital Trousseau

FRANKRIJK

GRAND-EST
STRASBOURG

Competence centre for rare vascular diseases
CHU de Strasbourg - Hôpital Civil

FRANKRIJK

GRAND-EST
VANDOEUVRE-LÈS-NANCY

Competence centre for rare vascular diseases
CHU de Nancy - Hôpital de Brabois

FRANKRIJK

HAUTS-DE-FRANCE
LILLE

Competence centre for rare vascular diseases
CHRU de Lille - Hôpital Claude Huriez

FRANKRIJK

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANKRIJK

ILE-DE-FRANCE
PARIS

FRANKRIJK

NORMANDIE
CAEN

Competence centre for rare vascular diseases
CHU de Caen - Hôpital de la Côte de Nacre

FRANKRIJK

NOUVELLE AQUITAINE
BORDEAUX

Competence centre for rare vascular diseases
CHU de Bordeaux - Hôpital Saint André

FRANKRIJK

NOUVELLE AQUITAINE
LIMOGES

Competence centre for rare vascular diseases
CHU de Limoges - Hôpital Dupuytren

FRANKRIJK

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHRU de Montpellier - Hôpital Saint-Eloi

FRANKRIJK

OCCITANIE
TOULOUSE

Competence centre for rare vascular diseases
CHU de Toulouse - Hôpital Rangueil

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Competence centre for rare vascular diseases
CHU de Marseille - Hôpital de la Timone

ITALIË

CAMPANIA
NAPOLI

Centre of Expertise for rare systemic or rheumatologic diseases
AOU Seconda Università degli Studi di Napoli - Cappella Cangiani

ITALIË

CAMPANIA
NAPOLI

ITALIË

CAMPANIA
NAPOLI

Centre of Expertise for rare rheumatologic and systemic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALIË

PIEMONTE
TORINO

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALIË

PUGLIA
BARI

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIË

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for rare vascular diseases
IRCCS Ospedale Casa Sollievo della Sofferenza - Polamb. Giovanni Paolo II

ITALIË

SICILIA
CATANIA

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALIË

SICILIA
CATANIA

ITALIË

TOSCANA
FIRENZE

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria Careggi - NEUROFARBA

ITALIË

TOSCANA
PISA

Centre of Expertise for rare systemic or rheumatologic diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

POLEN

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SLOWAKIJE

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SPANJE

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

VERENIGD KONINKRIJK

Greater Manchester
MANCHESTER

ZWEDEN

Landstinget i Uppsala län
UPPSALA

Clinical Genetics
Akademiska Sjukhuset

ZWEDEN

Stockholms läns landsting
STOCKHOLM

Clinical Genetics
Karolinska University Hospital - Clinical Genetics

ZWITSERLAND

Suisse Alémanique
ZÜRICH

ZWITSERLAND

Suisse Romande
LAUSANNE

Rare vascular disease clinic
Centre Hospitalier Universitaire Vaudois CHUV

ZWITSERLAND

Suisse Romande
LAUSANNE

Immunology and allergy clinic
Centre Hospitalier Universitaire Vaudois CHUV