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ORPHA:2032  Idiopathic pulmonary fibrosis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Walking short distances
Permanent limitation
Severe
Moving around within the home
Permanent limitation
Severe
Moving around outside the home
Permanent limitation
Severe
Driving
Permanent limitation
Severe
Shopping
Permanent limitation
Unspecified
Cooking/preparing meals
Permanent limitation
Unspecified
Doing housework
Permanent limitation
Unspecified
Looking after/helping others
Permanent limitation
Unspecified
Frequent
Temporality
Severity
Standing
Permanent limitation
Moderate
Bending
Permanent limitation
Moderate
Lifting and carrying objects
Permanent limitation
Moderate
Walking long distances
Permanent limitation
Severe
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Complete
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Severe
Washing oneself
Permanent limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Permanent limitation
Unspecified
Dressing/undressing
Permanent limitation
Unspecified
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Moderate
Using transportation
Permanent limitation
Low
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Seeking employment
Permanent limitation
Moderate
Performing professional tasks
Permanent limitation
Moderate
Undertaking a complex/multiple task
Permanent limitation
Moderate
Carrying out daily routines
Permanent limitation
Moderate
Taking part in community life
Permanent limitation
Unspecified
Playing with others
Permanent limitation
Moderate
Practicing sports
Permanent limitation
Severe
Practicing sports
Permanent limitation
Moderate
Participating in the arts and cultural activities
Permanent limitation
Low
Travelling
Permanent limitation
Unspecified
Occasional
Temporality
Severity
Focusing attention
Permanent limitation
Low
Writing messages
Transient limitation
Unspecified
Participating in a conversation
Permanent limitation
Low
Maintaining a standing position
Permanent limitation
Unspecified
Walking long distances
Permanent limitation
Complete
Falling asleep
Permanent limitation
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Unspecified
Handling emotions and mood
Permanent limitation
Unspecified
Maintaining family relationships
Permanent limitation
Low
Accessing higher education
Permanent limitation
Moderate
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Food
Temperature
Humidity
Air quality
Source: Pr Jeffrey J. SWIGRIS[Expert]_Lutte Contre la Fibrose Pulmonaire[Patient organisation] _Pulmonary Fibrosis Foundation[Patient organisation]
Last update: 15/06/2017

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