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Funded by an IRDiRC member =

Expert centre networks

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Thüringen
JENA

NETHERLANDS

Utrecht
UTRECHT

ENCALS: European Network to Cure ALS
UMC Utrecht - Universitair Medisch Centrum Utrecht

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Greater London
LONDON

North Start Clinical Network for paediatric neuromuscular disease
UCL Institute of Child Health, University College London

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Multicentric Research projects

CANADA

Ontario
TORONTO

Canadian ALS Research Network (CALS)
Sunnybrook Health Sciences Centre

CANADA

Québec
MONTRÉAL

Funded by an IRDiRC memberRNA-ALS: Dysregulation of RNA in the pathogenesis of ALS
Montreal Neurological Institute and Hospital

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

OCCITANIE
MONTPELLIER

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Sachsen
DRESDEN

ISRAEL

ISRAEL
REHOVOT

Funded by an IRDiRC memberREALS: Repurposed Enoxacin for the treatment of patients with Amyotrophic Lateral Sclerosis
Arnold R. Meyer Institute of Biological Sciences, Weizmann Institute of Science

NETHERLANDS

Utrecht
UTRECHT

Funded by an IRDiRC memberPYRAMID: Phenotype Research for ALS modifyer discovery
Rudolf Magnus Institute Stratenum

NETHERLANDS

Utrecht
UTRECHT

UNITED KINGDOM

Cambridgeshire
CAMBRIDGE

GERMANY

Baden-Württemberg
ULM

MND-Net: German Network for motoneuron diseases
Universitäts- und Rehabilitationskliniken Ulm (RKU)

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

CANADA

Colombie-Britannique
VANCOUVER

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

GERMANY

Nordrhein-Westfalen
ASCHEBERG

Verbund A.L.S. Deutschland
Diagnose ALS was nun e.V.

UNITED KINGDOM

Northamptonshire
NORTHAMPTON

International Alliance of ALS/MND Associations
International Alliance of ALS/MND Associations