There is no disease so rare
that it does not deserve attention

3 Research project networks ; 1 Biobank networks ;

Research project networks

• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • GM: Genodermatosis and Mediterranean
  • CHU Paris - Hôpital Necker - Enfants Malades
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • GENESKIN: European network on rare genetic skin diseases
  • Istituto Dermopatico dell'Immacolata - IRCCS
  • More information
• • NETHERLANDS
  • Gelderland
  • NIJMEGEN
  • IGMD - Institute for Genetic and Metabolic Disease
  • UMC St Radboud - Universitair Medisch Centrum St Radboud
  • More information

Biobank networks

• • ITALY
  • LIGURIA
  • GENOVA
  • TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • More information