There is no disease so rare
that it does not deserve attention

1 Expert centre networks ; 6 Research project networks ; 1 Biobank networks ;

Expert centre networks

• • UNITED KINGDOM
  • Greater Manchester
  • MANCHESTER
  • DYSCERNE: a European network of centres of expertise for dysmorphology
  • St Mary's Hospital
  • More information

Research project networks

• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • SKELNET - Skeletal Dysplasia Network
  • Universitätsklinikum Freiburg
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • BONN
  • CRANIRARE-2: an integrated clinical and scientific approach for craniofacial malformations
  • PT DLR - Deutschen Zentrum für Luft und Raumfahrt
  • More information
• • GERMANY
  • Sachsen-Anhalt
  • MAGDEBURG
  • International Clearinghouse for Birth Defects Monitoring Systems
  • Universitätsklinikum Magdeburg A.ö.R
  • More information
• • NETHERLANDS
  • Gelderland
  • NIJMEGEN
  • IGMD - Institute for Genetic and Metabolic Disease
  • UMC St Radboud - Universitair Medisch Centrum St Radboud
  • More information
• • UNITED KINGDOM
  • Greater Manchester
  • MANCHESTER
  • ESDN: European Skeletal Dysplasia Network
  • Faculty of Life Sciences - University of Manchester
  • More information
• • UNITED KINGDOM
  • Greater Manchester
  • MANCHESTER
  • EUROCRAN: European collaboration on craniofacial anomalies - Eurocleft clinical network
  • Faculty of Medical and Human Sciences - University of Manchester
  • More information

Biobank networks

• • ITALY
  • LIGURIA
  • GENOVA
  • TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • More information