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Funded by an IRDiRC member =

Expert centre networks

NETHERLANDS

Gelderland
NIJMEGEN

Radboudumc AGORA: network for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum

FRANCE

ILE-DE-FRANCE
PARIS

Cardiogen - French rare diseases Healthcare Network : hereditary heart diseases
CHU Paris-GH La Pitié Salpêtrière-Charles Foix - Hôpital Pitié-Salpêtrière

FRANCE

ILE-DE-FRANCE
PARIS

Fava-Multi - French rare diseases Healthcare Network : rare multisystemic vascular diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

NETHERLANDS

Noord-Holland
AMSTERDAM

FRANCE

ILE-DE-FRANCE
PARIS

VASCERN: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

Multicentric Research projects

FRANCE

ILE-DE-FRANCE
PARIS

CaPTAA: Cardiac Progenitors TransAtlantic Alliance
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

GERMANY

Berlin
BERLIN

Funded by an IRDiRC memberCompetence Network for Congenital Heart Defects
Kompetenznetz Angeborene Herzfehler

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

CAMPANIA
NAPOLI

CARDIOGENET: definition of a genetic network involved in congenital heart disease
TIGEM - Telethon Institute of Genetics and Medicine

Networks of patient registries

UNITED KINGDOM

Antrim and Newtownabbey
NEWTOWNABBEY

Alliances and umbrella organisations

GERMANY

Hessen
FRANKFURT AM MAIN

GERMANY

Nordrhein-Westfalen
AACHEN

European Congenital Heart Disease Organisation - ECHDO
Bundesverband Herzkranker Kinder e.V.