Rare diseases are rare, but
rare disease patients are numerous

5 Research project networks ; 2 Biobank networks ;

Research project networks

• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Réseau de recherche sur les formes autosomiques récessives de la maladie de Charcot-Marie-Tooth
  • CHU Paris-GH La Pitié Salpêtrière-Charles Foix - Hôpital Pitié-Salpêtrière
  • More information
• • GERMANY
  • Baden-Württemberg
  • TÜBINGEN
  • NEUROMICS: Integrated European Project on Omics Research of Rare Neuromuscular and Neurodegenerative Diseases
  • Universitätsklinikum Tübingen
  • More information
• • GERMANY
  • Bayern
  • MÜNCHEN
  • BNE: BrainNet Europe II: European brain tissue bank - Network for clinical neuroscience and basic research
  • Ludwig-Maximilians-Universität München
  • More information
• • ITALY
  • VENETO
  • PADOVA
  • Brains for brain: research group of the European task force on brain and neurodegenerative lysosomal storage diseases
  • Azienda Ospedaliera Universitaria di Padova
  • More information
• • NETHERLANDS
  • Gelderland
  • NIJMEGEN
  • IGMD - Institute for Genetic and Metabolic Disease
  • UMC St Radboud - Universitair Medisch Centrum St Radboud
  • More information

Biobank networks

• • GERMANY
  • Bayern
  • MÜNCHEN
  • Brain-Net : National network of brain banks in Germany
  • Ludwig-Maximilians-Universität München
  • More information
• • ITALY
  • LIGURIA
  • GENOVA
  • TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • More information