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Funded by an IRDiRC member =

Expert centre networks

AUSTRIA

WIEN
WIEN

ECNM: European Competence Network on Mastocytosis
Allgemeines Krankenhaus der Stadt Wien

FRANCE

ILE-DE-FRANCE
PARIS

MARIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

Multicentric Research projects

GERMANY

Schleswig-Holstein
LÜBECK

Kompetenznetzwerk Mastozytose e.V.
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

SPAIN

Castilla - La Mancha
TOLEDO

REMA: Spanish Network on Mastocytosis
Hospital Virgen del Valle

GERMANY

Bayern
ERLANGEN

Information network for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

Multinational clinical trials

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.