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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

FRANCE

ILE-DE-FRANCE
PARIS

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Hessen
WIESBADEN

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

NETHERLANDS

Zuid-Holland
LEIDEN

EUROBONET: European bone tumors network
LUMC - Leids Universitair Medisch Centrum

GERMANY

Bayern
ERLANGEN

Information network for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

BELGIUM

VLAAMS BRABANT
LEUVEN

BELGIUM

VLAAMS BRABANT
LEUVEN

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

Research network on CDG syndrome (FINISHED)
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

UNITED KINGDOM

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

Réseau Sud-Ouest des erreurs innées du métabolisme
CHU de Toulouse - Hôpital Purpan

GERMANY

Sachsen-Anhalt
MAGDEBURG

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico