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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

FRANCE

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

Multicentric Research projects

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FIM: French Intergroup of Myeloproliferative syndromes
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANY

Baden-Württemberg
MANNHEIM

Competence Network 'acute and chronic leukemias'
Universitätsklinikum Mannheim

GERMANY

Bayern
ERLANGEN

Information network for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

Multinational clinical trials

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Alliances and umbrella organisations

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations