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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

NETHERLANDS

Noord-Brabant
EINDHOVEN

Dutch Adrenal Network
Máxima Medisch Centrum, locatie Eindhoven

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

OCCITANIE
MONTPELLIER

ORKiD - French rare diseases Healthcare Network : rare renal diseases
CHRU de Montpellier - Hôpital Arnaud de Villeneuve

GERMANY

Baden-Württemberg
HEIDELBERG

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

Multicentric Research projects

GERMANY

Bayern
WÜRZBURG

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

EUNEFRON: the European network for the study of orphan nephropathies
Cliniques Universitaires UCL de Saint Luc - UCLStLuc

FRANCE

ILE-DE-FRANCE
PARIS

GERMANY

Baden-Württemberg
HEIDELBERG

Funded by an IRDiRC memberEURENOMICS: European Consortium for High-Throughput Research in Rare Kidney Diseases
Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik

GERMANY

Bayern
ERLANGEN

Information network for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.