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Funded by an IRDiRC member =

Expert centre networks

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

MARIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

FRANCE

ILE-DE-FRANCE
PARIS

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

UNITED KINGDOM

Greater Manchester
MANCHESTER

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

RITA: Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network
The Great North Children's Hospita, Royal Victoria Infirmary

GERMANY

Nordrhein-Westfalen
KREFELD

Multicentric Research projects

GERMANY

Baden-Württemberg
TÜBINGEN

BMFS: Network for Congenital Bone Marrow Failure Syndromes
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
SAINT-JOSSE-TEN-NOODE

CANADA

Colombie-Britannique
VANCOUVER

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

FINLAND

Finland
TAMPERE

IDR: ImmunoDeficiency Resource
University of Tampere

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC memberPID-NET: German Network on Primary Immunodeficiency Diseases
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Sachsen-Anhalt
MAGDEBURG

MOROCCO

Casablanca
CASABLANCA

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

UK Primary Immunodeficiency Network
The Great North Children's Hospita, Royal Victoria Infirmary

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberPERSIST: Persisting transgenesis
Istituto San Raffaele Telethon per la Terapia Genica - TIGET

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations