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Funded by an IRDiRC member =

Expert centre networks

FRANCE

HAUTS-DE-FRANCE
LILLE

NETHERLANDS

Zuid-Holland
ROTTERDAM

UNITED KINGDOM

Greater London
LONDON

EpiCARE: European Reference Network on Rare and Complex Epilepsies
Great Ormond Street Hospital for Children, NHS Foundation Trust

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

VASCern: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
TÜBINGEN

Funded by an IRDiRC memberNGFN plus: EMINet - Epilepsy and Migraine integrated network -terminated
Hertie-Institut für klinische Hirnforschung (HIH)

GERMANY

Berlin
BERLIN

Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie e.V.
Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie

GERMANY

Nordrhein-Westfalen
ESSEN

UNITED KINGDOM

Greater London
LONDON

Funded by an IRDiRC memberEpiPGX: Epilepsy Pharmacogenomics: delivering biomarkers for clinical use
The National Hospital For Neurology and Neurosurgery

GERMANY

Bayern
ERLANGEN

Information network for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

CANADA

Colombie-Britannique
VANCOUVER

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico