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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

Fava-Multi - French rare diseases Healthcare Network : rare multisystemic vascular diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCE

HAUTS-DE-FRANCE
LILLE

NETHERLANDS

Zuid-Holland
ROTTERDAM

UNITED KINGDOM

Greater London
LONDON

EpiCARE: European Reference Network on Rare and Complex Epilepsies
Great Ormond Street Hospital for Children, NHS Foundation Trust

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

VASCERN: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
TÜBINGEN

Funded by an IRDiRC memberNGFN plus: EMINet - Epilepsy and Migraine integrated network -terminated
Hertie-Institut für klinische Hirnforschung (HIH)

GERMANY

Berlin
BERLIN

Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie e.V.
Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie

GERMANY

Nordrhein-Westfalen
ESSEN

UNITED KINGDOM

Greater London
LONDON

Funded by an IRDiRC memberEpiPGX: Epilepsy Pharmacogenomics: delivering biomarkers for clinical use
The National Hospital For Neurology and Neurosurgery

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

CANADA

Colombie-Britannique
VANCOUVER

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico