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Funded by an IRDiRC member =

Expert centre networks

IRELAND

County Dublin
DUBLIN

Irish Traveller Network
Our Lady's Children's Hospital

FRANCE

ILE-DE-FRANCE
PARIS

MARIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Greater Manchester
MANCHESTER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

Multicentric Research projects

SPAIN

Cataluña
BELLATERRA

Spanish Fanconi Anemia research network
Universitat Autònoma de Barcelona

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
SAINT-JOSSE-TEN-NOODE

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
CHU Paris - Hôpital Necker-Enfants Malades

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

Multinational clinical trials

Networks of patient registries

GERMANY

Niedersachsen
HANNOVER

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations