x

Search for a rare disease

* (*) mandatory field

Other search option(s)

25 Result(s)

Sort by

Funded by an IRDiRC member =

Expert centre networks

ITALY

TOSCANA
PISA

ReCONNET: Rare Connective Tissue and Musculoskeletal Diseases Network
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater London
LONDON

North Start Clinical Network for paediatric neuromuscular disease
UCL Institute of Child Health, University College London

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

Multicentric Research projects

UNITED KINGDOM

Greater London
LONDON

ENJD: European Network for Juvenile Dermatomyositis
UCL Institute of Child Health, University College London

UNITED KINGDOM

Greater London
LONDON

Juvenile Dermatomyositis Research Group (JDRG)
UCL Institute of Child Health, University College London

FRANCE

ILE-DE-FRANCE
CRÉTEIL

GERMANY

Berlin
BERLIN

Competence Network Rheumatic Diseases
Geschäftsstelle Kompetenznetz-Rheuma

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

GRAND-EST
STRASBOURG

CRI: Club Rhumatismes et Inflammation
CHU de Strasbourg - Hôpital de Hautepierre

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)