Búsqueda de una enfermedad rara
Otra(s) opcion(es) de búsqueda
29 Resultado(s)
- 13 Redes de centros expertos
- 14 Redes de proyectos de investigación
- 1 Redes de registros de pacientes
- 1 Redes de biobancos
Financiado por un miembro del IRDiRC =
Redes de centros expertos

FRANCIA
HAUTS-DE-FRANCE
LILLE
CARADERM : Centres of expertise network structured by Inca for rare skin tumors
CHRU de Lille - Hôpital Claude Huriez

ALEMANIA
Berlin
BERLIN
Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ALEMANIA
Nordrhein-Westfalen
BONN
Comprehensive Cancer Center (CCC) Network (Expert centers)
Deutsche Krebshilfe e.V.

AUSTRIA
WIEN
WIEN
PaedCan-ERN: European Reference Network for Paediatric Cancer (haemato-oncology)
St. Anna Kinderspital

FRANCIA
AUVERGNE-RHONE-ALPES
LYON

FRANCIA
BOURGOGNE-FRANCHE-COMTE
DIJON
AnDDI-Rares - French rare diseases Healthcare Network : rare developmental defect and rare intellectual disability
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCIA
ILE-DE-FRANCE
PARIS
Fimarad - French rare diseases Healthcare Network : rare dermatologic diseases
CHU Paris - Hôpital Necker-Enfants Malades

FRANCIA
ILE-DE-FRANCE
PARIS
ERN-Skin: European Reference Network on Rare and Undiagnosed Skin Disorders
CHU Paris - Hôpital Necker-Enfants Malades

HUNGRIA
Közép-Magyarország
BUDAPEST
Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

PAISES BAJOS (LOS)
Gelderland
NIJMEGEN
ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

REINO UNIDO (EL)
Greater Manchester
MANCHESTER
DYSCERNE: a European network of centres of expertise for dysmorphology
St Mary's Hospital

REINO UNIDO (EL)
Greater Manchester
MANCHESTER
ITHACA: European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability
St Mary's Hospital

SUIZA
Suisse Alémanique
BERN
Network for Cancer Predisposition Testing and Counseling (CPTC)
SAKK Coordinating Center
Redes de proyectos de investigación

ITALIA
TOSCANA
FIRENZE
Multiple Endocrine Neoplasia Network
Azienda Ospedaliero Universitaria Careggi - NEUROFARBA

FRANCIA
AUVERGNE-RHONE-ALPES
LYON
RENAPOL: French network on rare digestive polyposis
CHU de Lyon HCL - GH Edouard Herriot

ALEMANIA
Nordrhein-Westfalen
ESSEN
Dermatologic Cooperative Oncology Group (DeCOG)
Universitätsklinikum Essen

ALEMANIA
Baden-Württemberg
TÜBINGEN
Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

ALEMANIA
Berlin
BERLIN
Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ALEMANIA
Sachsen-Anhalt
MAGDEBURG
International Clearinghouse for Birth Defects Monitoring Systems
Universitätsklinikum Magdeburg A.ö.R

AUSTRIA
WIEN
WIEN
DIRECT: disseminate research funded by EC improving treatment options for children suffering from cancer
St. Anna Kinderkrebsforschung

CANADA
Colombie-Britannique
VANCOUVER
Maternal Infant Child and Youth Research Network (MICYRN)
University of British Columbia

ITALIA
LAZIO
ROMA
UnRareNet: a muticenter collaborative research network for the identification and study of rare undiagnosed patients (completed)
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALIA
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALIA
LOMBARDIA
MILANO
RARECARENet: Information network on rare cancers
Fondazione IRCCS Istituto Nazionale dei Tumori

REINO UNIDO (EL)
South Glamorgan
CARDIFF
South East Wales Cancer Network
University Hospital of Wales

REINO UNIDO (EL)
Tyne & Wear
NEWCASTLE UPON TYNE
EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

FRANCIA
ILE-DE-FRANCE
ORSAY
CAMINEMS: Integrated Micro-Nano-Opto Fluidic systems for high-content diagnosis and studies of rare cancer cells
Institut Curie
Redes de registros de pacientes

ALEMANIA
Schleswig-Holstein
LÜBECK
GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.
Redes de biobancos

ITALIA
LIGURIA
GENOVA