Zoek een zeldzame ziekte
Andere zoekoptie(s)
22 Resultaat/Resultaten
- 8 Expert centre networks
- 12 Netwerken van onderzoeksprojecten
- 1 Patiëntenregisternetwerken
- 1 Biobanknetwerken
Gefinancierd door een IRDiRC-lid =
Expert centre networks

NEDERLAND
Gelderland
NIJMEGEN
ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

ZWITSERLAND
Suisse Alémanique
BERN
Network for Cancer Predisposition Testing and Counseling (CPTC)
SAKK Coordinating Center

FRANKRIJK
GRAND-EST
STRASBOURG
ERN-EYE: European Reference Network on Rare Eye Diseases
CHU de Strasbourg - Hôpital Civil

DUITSLAND
Berlin
BERLIN
Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

DUITSLAND
Nordrhein-Westfalen
BONN
Comprehensive Cancer Center (CCC) Network (Expert centers)
Deutsche Krebshilfe e.V.

FRANKRIJK
AUVERGNE-RHONE-ALPES
LYON

OOSTENRIJK
WIEN
WIEN
PaedCan-ERN: European Reference Network for Paediatric Cancer (haemato-oncology)
St. Anna Kinderspital

FRANKRIJK
GRAND-EST
STRASBOURG
SENSGENE - French rare diseases Healthcare Network : rare sensory diseases
CHU de Strasbourg - Hôpital Civil
Netwerken van onderzoeksprojecten

DUITSLAND
Baden-Württemberg
TÜBINGEN
HOPE 2: Hereditary Retinal Disorders - From Patients Towards Therapies
Department für Augenheilkunde Tübingen

CANADA
Colombie-Britannique
VANCOUVER
Maternal Infant Child and Youth Research Network (MICYRN)
University of British Columbia

FRANKRIJK
ILE-DE-FRANCE
ORSAY
CAMINEMS: Integrated Micro-Nano-Opto Fluidic systems for high-content diagnosis and studies of rare cancer cells
Institut Curie

ITALIË
LAZIO
ROMA
UnRareNet: a muticenter collaborative research network for the identification and study of rare undiagnosed patients (completed)
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

DUITSLAND
Baden-Württemberg
TÜBINGEN
Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

DUITSLAND
Berlin
BERLIN
Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALIË
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALIË
LOMBARDIA
MILANO
RARECARENet: Information network on rare cancers
Fondazione IRCCS Istituto Nazionale dei Tumori

OOSTENRIJK
WIEN
WIEN
DIRECT: disseminate research funded by EC improving treatment options for children suffering from cancer
St. Anna Kinderkrebsforschung

VERENIGD KONINKRIJK
South Glamorgan
CARDIFF
South East Wales Cancer Network
University Hospital of Wales

VERENIGD KONINKRIJK
Tyne & Wear
NEWCASTLE UPON TYNE
EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

BELGIË
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUXELLES
EuroVisionNet: Visual Impairment and Degeneration: A Road-map for Vision Research within Europe (TERMINATED)
EEIG - EUROPEAN VISION INSTITUTE
Patiëntenregisternetwerken

DUITSLAND
Schleswig-Holstein
LÜBECK
GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.
Biobanknetwerken

ITALIË
LIGURIA
GENOVA