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The portal for rare diseases and orphan drugs

Orphanet index

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Orphanet funding

Orphanet was established in 1997 by the French Ministry of Health (Direction Générale de la Santé) and the INSERM (Institut National de la Santé et de la Recherche Médicale). Both agencies are still funding the core project.

The European Commission is funding the encyclopaedia and the collection of data in European countries (since 2000 DG Public Health and Consumers Protection grants No S12.305098; S12.324970; SPC.2002269-2003220 and since 2004 DG Research grant No LSSM-CT-2004-503246; FP6-512148; LSHB-CT-2006-08933).

Others sponsors are also funding Orphanet services:

• The French Muscular Dystrophy Association ( Association Française contre les Myopathies ; AFM ) sponsors OrphaNews France.
• The French pharmaceutical companies association ( Les Entreprises du Médicament; LEEM ) sponsors the development of the OrphanXchange database and the collection of orphan drugs data.

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