Orphanet Reports Series
Orphanet reports are a serie of texts covering topics relevant to all rare diseases. New reports are regularly put online and some of these texts are periodically updated. Acrobat Reader is required to read the documents
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Prevalence or reported number of published cases listed in alphabetical order of disease
November 2011 - n°1
Diseases listed by decreasing prevalence or number of published cases
November 2011 - n°2
Disease Registries in Europe
January 2011
European collaborative research projects funded by DG Research and by E-Rare in the field of rare diseases & European clinical networks funded by DG Sanco and contributing to clinical research in the field of rare diseases
November 2010
Lists of orphan drugs in Europe
January 2012
Orphanet Activity Report
2011
Orphanet Activity Report
2010
Orphanet Activity Report
2009
Orphanet 2011 Users Satisfaction Survey
Orphanet 2010 Users Satisfaction Survey
OrphaNews Europe
2010 Reader Satisfaction Survey
