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Orphanet Reports Series

Orphanet reports are a serie of texts covering topics relevant to all rare diseases. New reports are regularly put online and some of these texts are periodically updated. Acrobat Reader is required to read the documents

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More complete and large datasets ara available on Orphadata.org.
Orphadata provides free access data from Orphanet in technical usefull format (xml)
Orphadata also provides access, on request, to other elements of the Orphanet database after signature of a Material Transfer Agreement.
More information about www.orphadata.org


Rare diseases

List of rare diseases List of rare diseases and synonyms in alphabetical order
July 2014
prevalence
Disease Registries in Europe Disease Registries in Europe
January 2014
Research Infrastructures useful to Rare Diseases in Europe List of Research Infrastructures useful to Rare Diseases in Europe
December 2013

Orphan Drugs

liste de médicaments orphelins en Europe Lists of medicinal products for rare diseases in Europe
July 2014

Activity reports

Activity report
Orphanet 2011 Users Satisfaction Survey