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Funded by an IRDiRC member =

Registries and Biobanks

NETHERLANDS

Gelderland
NIJMEGEN

AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence

AUSTRIA

STEIERMARK
GRAZ

Styrian registry of congenital anomalies - contributes to the EUROCAT network
Medizinische Universität Graz
Forschungsverein zur Registrierung steirischer Geburtsfehlbildungen

BELGIUM

ANTWERPEN
ANTWERPEN

Antwerpen registry of congenital anomalies - contributes to the EUROCAT network
Provinciaal Instituut voor Hygiëne - Antwerpen
EUROCAT Antwerpen

BELGIUM

HAINAUT
GOSSELIES

Hainault and Namur registry of congenital anomalies - contributes to the EUROCAT network
Institut de Pathologie et de Génétique - Gosselies
Centre de Génétique Humaine

DENMARK

Syddanmark
ODENSE

Funen county registry of congenital anomalies - contributes to the EUROCAT network
University of Southern Denmark
Epidemiology department

FINLAND

Finland
HELSINKI

Register of Congenital Malformations, Epämuodostumarekisteri
National Institute for Health and Welfare
Terveyden ja hyvinvoinnin laitos

FRANCE

AUVERGNE-RHONE-ALPES
BRON

French familial cardiac malformations registry
CHU de Lyon HCL - GH Est
Laboratoire cardiogénétique - Malformations cardiaques congénitales

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Auvergne registry of congenital anomalies - contributes to the EUROCAT network
CHU de Clermont-Ferrand - Hôpital d'Estaing
Service de génétique

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Rhône-Alpes registry of congenital anomalies - contributes to the EUROCAT network
Registre des Malformations en Rhône Alpes
Registre des Malformations en Rhône Alpes REMERA

FRANCE

ILE-DE-FRANCE
PARIS

Paris registry of congenital anomalies - contributes to the EUROCAT network
CHU Paris Centre - Maternité Port Royal
Equipe EPOPé

FRANCE

OUTRE-MER
FORT DE FRANCE

French West Indies registry of congenital anomalies - contributes to the EUROCAT network
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant
Centre pluridisciplinaire de diagnostic prénatal

FRANCE

OUTRE-MER
SAINT-PIERRE

La Réunion Fench Island registry of congenital anomalies - contributes to the EUROCAT network
CHU de la Réunion - GHSR - GH Sud-Réunion
Unité de génétique médicale Foetopathologie et Oncogénétique

GERMANY

Berlin
BERLIN

Funded by an IRDiRC memberGerman registry for congenital heart defects - part of the competence network for congenital heart defects
Kompetenznetz Angeborene Herzfehler
Nationales Register für angeborene Herzfehler e. V.

GERMANY

Berlin
BERLIN

Funded by an IRDiRC memberGerman Biobank for congenital heart defects - part of the competence network for congenital heart defects
Kompetenznetz Angeborene Herzfehler
Nationales Register für angeborene Herzfehler e. V.

GERMANY

Rheinland-Pfalz
MAINZ

Mainz registry of congenital anomalies - contributes to the EUROCAT network
Universitätsmedizin Mainz
Geburtenregister Mainzer Modell

GERMANY

Sachsen-Anhalt
MAGDEBURG

Centre Saxony-Anhalt registry of congenital anomalies - contributes to the EUROCAT network
Universitätsklinikum Magdeburg A.ö.R
MONZ - Fehlbildungsmonitoring Sachsen-Anhalt

IRELAND

County Cork
CORK

IRELAND

County Dublin
DUBLIN

Dublin registry of congenital anomalies - contributes to the EUROCAT network
Dr. Steeven's Hospital
HSE Registry of Congenital Anomalies (East)

IRELAND

County Kilkenny
KILKENNY

South East of Ireland registry of congenital anomalies - part of BINOCAR and EUROCAT network
Health Service Executive South SE
South East of Ireland registry of congenital anomalies

ITALY

CAMPANIA
BENEVENTO

Campania registry of congenital anomalies - contributes to the EUROCAT network
A.O.R.N. "Gaetano Rummo"
U.O.C. di Genetica Medica

ITALY

SICILIA
CATANIA

ISMAC: Sicilian registry of congenital anomalies - contributes to the EUROCAT network
ASMAC
Associazione per la Prevenzione Sociale e per il Trattamento delle Malformazioni Congenite

ITALY

VENETO
PADOVA

North-East of Italy registry of congenital anomalies - contributes to the EUROCAT network
Azienda Ospedaliera di Padova
U.O.C. Genetica Clinica ed Epidemiologica

NETHERLANDS

Groningen
GRONINGEN

EUROCAT Northern Netherlands - contributes to the international EUROCAT network
UMCG - Universitair Medisch Centrum Groningen
Afdeling Genetica

NETHERLANDS

Noord-Holland
AMSTERDAM

CONCOR: Dutch DNA biobank of patients with a congenital heart malformation
AMC - Academisch Medisch Centrum
Laboratorium voor Genoomdiagnostiek

NETHERLANDS

Noord-Holland
AMSTERDAM

CONCOR: Dutch registry of patients with a congenital heart malformation
AMC - Academisch Medisch Centrum
Afdeling Cardiologie

NETHERLANDS

Noord-Holland
AMSTERDAM

CONCOR: Dutch DNA biobank of patients with a congenital heart malformation
AMC - Academisch Medisch Centrum
Afdeling Cardiologie

POLAND

Poznan
POZNAN

PRCM: Polish registry of congenital malformations - contributes to the EUROCAT network
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej

PORTUGAL

SUL
LISBOA

RENAC - Registo Nacional de Anomalias Congénitas (contribui para a rede EUROCAT)
Instituto Nacional de Saúde Dr. Ricardo Jorge - Lisboa
Departamento de Epidemiologia

SPAIN

País Vasco
VITORIA-GASTEIZ

RACAV: Registry of congenital anomalies of the Basque Country (Spain) - contributes to the EUROCAT network
Gobierno Vasco - Departamento de Sanidad y Consumo
Gobierno Vasco. Departamento de Salud

SWEDEN

Skane
LUND

SWEDCON: Nationellt register för medfödda hjärtsjukdomar
Skånes Universitetssjukhus
Cardiology Division

SWITZERLAND

Suisse Romande
LAUSANNE

UNITED KINGDOM

Merseyside
LIVERPOOL

Merseyside and Cheshire registry of congenital anomalies -part of BINOCAR and EUROCAT network
Liverpool Women's NHS Foundation Trust
Mersey Perinatal Epidemiology Unit, Department of Obstetrics & Gynaecology

UNITED KINGDOM

Strathclyde
GLASGOW

Glasgow registry of congenital anomalies - part of BINOCAR and EUROCAT network
Royal Hospital for Sick Children
Paediatric Epidemiology & Community Health (PEACH) Unit

UNITED KINGDOM

West Glamorgan
NEWPORT

National Congenital Anomaly System (NCAS) - part of BINOCAR and EUROCAT network
Office for National Statistics
National Congenital Anomaly System (NCAS)

UNITED KINGDOM

West Glamorgan
SWANSEA

CARIS - Welsh registry of congenital anomalies - part of BINOCAR and EUROCAT network
Singleton Hospital
Congenital Anomaly Register & Information Service for Wales