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Funded by an IRDiRC member =

Registries and Biobanks

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

French registry of children solid tumors
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant

GERMANY

Baden-Württemberg
FREIBURG

International pheochromocytoma and paraganglioma registry
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Sektion für präventive Medizin

SPAIN

Asturias
OVIEDO

Registro MEN: Spanish registry of multiple endocrine neoplasia, pheochromocitomas and paragangliomas
Hospital Universitario Central de Asturias
Servicio de Endocrinología y Nutrición (HUCA)

AUSTRALIA

Victoria
PARKVILLE

ENSAT: European Network for the Study of Adrenal Tumours
The University of Melbourne
Melbourne eResearch Group (MEG)

GERMANY

Bayern
WÜRZBURG

Registry and biobank for rare thyroid and parathyroid carcinoma
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie

GERMANY

Hamburg
HAMBURG

German adrenal tumors registry
Kath. Marienkrankenhaus gGmbH
Institut für Pathologie

GERMANY

Sachsen-Anhalt
MAGDEBURG

GPOH-MET Registry: Registry for children and adolescents with malignant endocrine tumour
Universitätsklinikum Magdeburg A.ö.R
Bereich Pädiatrische Hämatologie und Onkologie

PORTUGAL

CENTRO
COIMBRA

Adrenal tumor national registry
Hospitais da Universidade de Coimbra
Serviço de endocrinologia diabetes e metabolismo

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Regional registry of thyroid cancers in Rhône-Alpes
CHU de Lyon HCL - GH Est
Centre de médecine nucléaire

GERMANY

Nordrhein-Westfalen
KÖLN

Tumor bank for embryonal tumors
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie

PORTUGAL

CENTRO
COIMBRA

Central regional cancer patient registry
Instituto Português de Oncologia de Coimbra de Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro

PORTUGAL

ILHAS
AÇORES

Açores regional cancer patient registry (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores

PORTUGAL

NORTE
PORTO

North regional cancer registry (RORENO)
Instituto Português de Oncologia do Porto, EPE / IPOFG - CRO Porto
Registo Oncológico Regional do Norte

PORTUGAL

NORTE
VILA NOVA DE GAIA

Vila Nova de Gaia regional cancer registry (ROG)
Centro Hospitalar de Vila Nova de Gaia
Registo de Cancro (ROG)

AUSTRIA

WIEN
WIEN

ESTONIA

Tallinn
TALLINN

Estonian cancer registry - contributes to the RARECARE project
National Institute for Health Development
Estonian Cancer Registry

FINLAND

Finland
HELSINKI

Finnish cancer registry - contributes to the RARECARE project, Suomen Syöpärekisteri
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry

GERMANY

Baden-Württemberg
HEIDELBERG

Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg

GERMANY

Bayern
MÜNCHEN

MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München

GERMANY

Bayern
NÜRNBERG

Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern

GERMANY

Berlin
BERLIN

GERMANY

Bremen
BREMEN

Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters

GERMANY

Hamburg
HAMBURG

Hamburg cancer registry
Behörde für Soziales, Familie, Gesundheit und Verbraucherschutz
Hamburgisches Krebsregister

GERMANY

Rheinland-Pfalz
MAINZ

German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI

GERMANY

Saarland
SAARBRÜCKEN

GERMANY

Schleswig-Holstein
KIEL

German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

GERMANY

Schleswig-Holstein
LÜBECK

Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein

ICELAND

ICELAND
REYKJAVIK

MALTA

MALTA
GUARDAMANGIA

Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry

NORWAY

Østlandet
OSLO

Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway

POLAND

Kielce
KIELCE

Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology

POLAND

Kraków
KRAKOW

Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology

POLAND

Warszawa
WARSZAWA

Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology

PORTUGAL

SUL
LISBOA

Registo Oncológico Regional Sul - contribui para o projeto RARECARE
Instituto Português de Oncologia - Centro de Lisboa
Registo Oncológico Regional Sul

SLOVAKIA

Bratislavsky kraj
BRATISLAVA

National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry

SLOVENIA

SLOVENIA
LJUBLJANA

Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia

SWEDEN

Stockholms läns landsting
STOCKHOLM

Swedish Childhood Cancer Registry
Astrid Lindgren Children's Hospital - Karolinska
Pediatric Oncology

SWITZERLAND

Suisse Alémanique
BERN

Swiss Childhood Cancer Registry
Institute of Social and Preventive Medicine (ISPM)

AUSTRIA

TIROL
INNSBRUCK

Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck

DENMARK

Sjælland
COPENHAGEN

Mendelian cytogenetics network online database
The Panum Institute-University of Copenhagen
Department of Cellular and Molecular Medicine

ESTONIA

Tartu
TARTU

Biobank of the Estonian genome center
Tartu University Hospital
Centre of Genetics - United laboratories

ITALY

LIGURIA
GENOVA

Cell line and DNA Biobank from patients affected by genetic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Laboratorio di Diagnosi Pre-Postnatale Malattie Metaboliche

ITALY

LIGURIA
GENOVA

Funded by an IRDiRC memberTelethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Laboratorio di Diagnosi Pre-Postnatale Malattie Metaboliche

KOREA, REPUBLIC OF

KOREA, REPUBLIC OF
SEOUL

Funded by an IRDiRC memberKorean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory

MOROCCO

Rabat
RABAT

Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale

SPAIN

Comunidad Valenciana
VALENCIA

SPAIN

Madrid
MADRID

BioNER: Biobank of the Institute of Rare Diseases Research/Institute of Health Carlos III
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

SPAIN

País Vasco
BARAKALDO

Funded by an IRDiRC memberBasque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco

Networks of registries and biobanks

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
  • Institut für Krebsepidemiologie e.V.
  • Registerstelle Krebsregister Schleswig-Holstein
  • ITALY

    LIGURIA
    GENOVA

    TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • Laboratorio di Diagnosi Pre-Postnatale Malattie Metaboliche