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Funded by an IRDiRC member =

Registries and Biobanks

FRANCE

ILE-DE-FRANCE
PARIS

UNITED KINGDOM

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
The Institute of Child Health & The Division of Medicine, UCL
Arthritis Research UK Centre for Adolescent Rheumatology

UNITED KINGDOM

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
UCL Institute of Child Health, University College London
Juvenile Dermatomyositis Research Centre

UNITED KINGDOM

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
UCL Institute of Child Health, University College London
Rheumatology Unit

UNITED KINGDOM

Merseyside
LIVERPOOL

UK and Ireland Juvenile Dermatomyositis Repository
Alder Hey Children's Hospital
Department of Rheumatology

CANADA

Québec
MONTRÉAL

Canadian Inflammatory Myopathy Study (CIMS)
Hôpital général juif - Jewish General Hospital
Rheumatology Department, Suite A 725

CANADA

Québec
MONTRÉAL

Canadian Inflammatory Myopathy Study (CIMS)
Montreal Neurological Institute and Hospital
Clinical Research Unit (CRU)

FRANCE

ILE-DE-FRANCE
PARIS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Belgian Neuromuscular Disease Registry
Scientific Institute of Public Health WIV/ISP
Epidemiology - Rare Diseases

CANADA

Alberta
CALGARY

Canadian Neuromuscular Disease Registry - part of the TREAT-NMD network
University of Calgary Health Science Centre
Department of Clinical Neurosciences

CYPRUS

Cyprus
NICOSIA

FRANCE

ILE-DE-FRANCE
GARCHES

French registry of neuromuscular diseases from reference centres
CHU Paris IdF Ouest - Hôpital Raymond Poincaré
Centre de Référence Maladies Neuromusculaires

FRANCE

ILE-DE-FRANCE
PARIS

French registry of neuromuscular diseases from reference centres
CHU Paris - Hôpital Necker-Enfants Malades
Consultation Myopathie

GERMANY

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

GERMANY

Nordrhein-Westfalen
AACHEN

Brain-net - brain tissue bank Aachen
Universitätsklinikum Aachen
Institut für Neuropathologie

ITALY

VENETO
PADOVA

Funded by an IRDiRC memberRegional registry for neuromuscular disorders
Azienda Ospedaliera Universitaria di Padova - Campus Biomedico Pietro d'Abano
Neuromuscular Laboratory

ITALY

VENETO
PADOVA

Neuromuscular Tissue Bank (NMTB) (EuroBioBank partner)
Azienda Ospedaliera Universitaria di Padova - Campus Biomedico Pietro d'Abano
Neuromuscular Laboratory

NETHERLANDS

Gelderland
NIJMEGEN

Dutch Neuromuscular Database CRAMP: Computer Registry of All Myopathies and Polyneuropathies
Radboudumc - Radboud universitair medisch centrum
Afdeling Neurologie

SLOVENIA

SLOVENIA
LJUBLJANA

Human tissue biobank of Neuromuscular diseases (EuroBioBank partner)
University Medical Center Ljubljana
Institute of Anatomy

GERMANY

Niedersachsen
GÖTTINGEN

ESNEK - Rare paediatric neurological disease registry Germany
Universitätsmedizin Göttingen
Geschäftsstelle der ESNEK

GERMANY

Nordrhein-Westfalen
MÜNSTER

Brain-Net - brain tissue bank Munster (pediatric neuropathology)
Institut für Neuropathologie der Medizinischen Fakultät Münster
Institut für Neuropathologie

Networks of registries and biobanks

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
  • Hospital de la Santa Creu i Sant Pau
  • Servicio de Neurología
  • UNITED KINGDOM

    Tyne & Wear
    NEWCASTLE UPON TYNE

    Funded by an IRDiRC memberTREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
  • Newcastle upon Tyne Hospitals NHS Trust
  • Institute of Genetic Medicine
  • GERMANY

    Bayern
    MÜNCHEN

    Brain-Net Germany : National network of brain banks in Germany
  • Zentrum für Neuropathologie und Prionforschung (ZNP)
  • Zentrum für Neuropathologie und Prionforschung der LMU München