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Registries and Biobanks

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

KAWA-NET: KAWASAKI disease registry
GHU Paris-Sud - Hôpital de Bicêtre
Service de rhumatologie pédiatrique

FRANCE

ILE-DE-FRANCE
PARIS

French pediatric registry of rituximab treated patients affected by severe systemic diseases - contributes to the French AIR registry
CHU Paris - Hôpital Necker-Enfants Malades
Unité d'Immunologie-Hématologie et Rhumatologie Pédiatriques

FRANCE

ILE-DE-FRANCE
PARIS

GERMANY

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

GERMANY

Schleswig-Holstein
LÜBECK

German vasculitis registry
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie

IRELAND

County Dublin
DUBLIN

The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin

SWITZERLAND

Suisse Romande
ETOY

JIRcohorte
Fondation rhumatismes-enfants-suisse

SWITZERLAND

Suisse Romande
LAUSANNE

JIRcohorte
Centre Hospitalier Universitaire Vaudois CHUV
URIRP - Unité Romande d'Immuno-Rhumatologie Pédiatrique

UNITED KINGDOM

Greater London
LONDON

UK and Ireland Vasculitis registry (UKIVAS)
Royal Free London Hospital
University College London, Centre for Nephrology

UNITED KINGDOM

Oxfordshire
OXFORD

UK and Ireland Vasculitis registry (UKIVAS)
Nuffield Orthopaedic Centre
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences

Networks of registries and biobanks

IRELAND

County Dublin
DUBLIN

UKIVAS - UK and Ireland registry of autoimmune vasculitides
  • St James's Hospital
  • Trinity Health Kidney Centre - Trinity College Dublin