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Rechercher un registre/une biobanque

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Registres et biobanques

FRANCE

ILE-DE-FRANCE
PARIS

ROYAUME-UNI

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
The Institute of Child Health & The Division of Medicine, UCL
Arthritis Research UK Centre for Adolescent Rheumatology

ROYAUME-UNI

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
UCL Institute of Child Health, University College London
Juvenile Dermatomyositis Research Centre

ROYAUME-UNI

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Repository
UCL Institute of Child Health, University College London
Rheumatology Unit

ROYAUME-UNI

Merseyside
LIVERPOOL

UK and Ireland Juvenile Dermatomyositis Repository
Alder Hey Children's Hospital
Department of Rheumatology

CANADA

Québec
MONTRÉAL

Étude canadienne sur les myopathies inflammatoires (ECMI)
Hôpital général juif - Jewish General Hospital
Rheumatology Department, Suite A 725

CANADA

Québec
MONTRÉAL

Étude canadienne sur les myopathies inflammatoires (ECMI)
Montreal Neurological Institute and Hospital
Clinical Research Unit (CRU)

ALLEMAGNE

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

ALLEMAGNE

Nordrhein-Westfalen
AACHEN

Brain-net - brain tissue bank Aachen
Universitätsklinikum Aachen
Institut für Neuropathologie

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Belgian Neuromuscular Disease Registry
Scientific Institute of Public Health WIV/ISP
Epidemiology - Rare Diseases

CANADA

Alberta
CALGARY

Canadian Neuromuscular Disease Registry
University of Calgary Health Science Centre
Department of Clinical Neurosciences

CHYPRE

Cyprus
NICOSIA

FRANCE

ILE-DE-FRANCE
GARCHES

Registre français des maladies neuromusculaires des centres de référence
CHU Paris IdF Ouest - Hôpital Raymond Poincaré
Centre de Référence Maladies Neuromusculaires

FRANCE

ILE-DE-FRANCE
PARIS

Registre français des maladies neuromusculaires des centres de référence
CHU Paris - Hôpital Necker-Enfants Malades
Consultation myologie

ITALIE

VENETO
PADOVA

Neuromuscular Tissue Bank (NMTB) (EuroBioBank partner)
Azienda Ospedaliera Universitaria di Padova - Campus Biomedico Pietro d'Abano
Neuromuscular Laboratory

PAYS-BAS

Gelderland
NIJMEGEN

Dutch Neuromuscular Database CRAMP: Computer Registry of All Myopathies and Polyneuropathies
Radboudumc - Radboud universitair medisch centrum
Afdeling Neurologie

SLOVENIE

SLOVENIA
LJUBLJANA

Human tissue biobank of Neuromuscular diseases (EuroBioBank partner)
University Medical Center Ljubljana
Institute of Anatomy

ALLEMAGNE

Niedersachsen
GÖTTINGEN

ESNEK - Rare paediatric neurological disease registry Germany
Universitätsmedizin Göttingen
Geschäftsstelle der ESNEK

ALLEMAGNE

Nordrhein-Westfalen
MÜNSTER

Brain-Net - brain tissue bank Munster (pediatric neuropathology)
Institut für Neuropathologie der Medizinischen Fakultät Münster
Institut für Neuropathologie

Réseaux de registres et biobanques

ESPAGNE

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
  • Hospital de la Santa Creu i Sant Pau
  • Servicio de Neurología
  • ROYAUME-UNI

    Tyne & Wear
    NEWCASTLE UPON TYNE

    Financé par un membre IRDiRCTREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
  • Newcastle upon Tyne Hospitals NHS Trust
  • Institute of Genetic Medicine
  • ALLEMAGNE

    Bayern
    MÜNCHEN

    Brain-Net Germany : National network of brain banks in Germany
  • Zentrum für Neuropathologie und Prionforschung (ZNP)
  • Zentrum für Neuropathologie und Prionforschung der LMU München