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Registers en biobanken

PORTUGAL

SUL
LISBOA

Biobanco-IMM
Faculdade de Medicina da Universidade de Lisboa
Biobanco-IMM

VERENIGD KONINKRIJK

Greater London
LONDON

Family History of Bowel Cancer Registry
Department of Gastroenterology
West Middlesex University Hospital

ZWEDEN

Stockholms läns landsting
STOCKHOLM

Swedish Polyposis Registry
Astrid Lindgren Children's Hospital - Karolinska
Gastro Center

DUITSLAND

Bayern
ERLANGEN

STEP Registry: Registry for rare tumors in children and adolescents
Kinder- und Jugendklinik des Universitätsklinikums Erlangen
Kinder- und Jugendklinik

DUITSLAND

Nordrhein-Westfalen
DORTMUND

STEP Registry: Registry for rare tumors in children and adolescents
Klinikum Dortmund gGmbH - Klinikzentrum Mitte
Klinik für Kinder- und Jugendmedizin

DENEMARKEN

Sjælland
COPENHAGEN

Mendelian cytogenetics network online database
The Panum Institute-University of Copenhagen
Department of Cellular and Molecular Medicine

DUITSLAND

Baden-Württemberg
HEIDELBERG

Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg

DUITSLAND

Bayern
MÜNCHEN

MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München

DUITSLAND

Bayern
NÜRNBERG

Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern

DUITSLAND

Berlin
BERLIN

DUITSLAND

Bremen
BREMEN

Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters

DUITSLAND

Hamburg
HAMBURG

Hamburg cancer registry
Behörde für Soziales, Familie, Gesundheit und Verbraucherschutz
Hamburgisches Krebsregister

DUITSLAND

Rheinland-Pfalz
MAINZ

German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI

DUITSLAND

Saarland
SAARBRÜCKEN

DUITSLAND

Schleswig-Holstein
KIEL

German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

DUITSLAND

Schleswig-Holstein
LÜBECK

Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein

ESTLAND

Tallinn
TALLINN

Estonian cancer registry - contributes to the RARECARE project
National Institute for Health Development
Estonian Cancer Registry

ESTLAND

Tartu
TARTU

Biobank of the Estonian genome center
Tartu University Hospital
Centre of Genetics - United laboratories

FINLAND

Finland
HELSINKI

Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry

FRANKRIJK

ILE-DE-FRANCE
PARIS

Gefinancierd door een IRDiRC-lidNational cohort for the evaluation of individual burden in the course of rare skin diseases
CHU Paris - Hôpital Necker-Enfants Malades
Centre MAGEC (MAladies rares Génétiques à Expression Cutanée)

IJSLAND

ICELAND
REYKJAVIK

ITALIË

LIGURIA
GENOVA

Cell line and DNA Biobank from patients affected by genetic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

ITALIË

LIGURIA
GENOVA

Gefinancierd door een IRDiRC-lidTelethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

MALTA

MALTA
GUARDAMANGIA

Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry

MAROKKO

Rabat
RABAT

Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale

NOORWEGEN

Østlandet
OSLO

Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway

OOSTENRIJK

TIROL
INNSBRUCK

Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck

OOSTENRIJK

WIEN
WIEN

POLEN

Kielce
KIELCE

Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology

POLEN

Kraków
KRAKOW

Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology

POLEN

Warszawa
WARSZAWA

Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology

PORTUGAL

CENTRO
COIMBRA

Central regional cancer patient registry
Instituto Português de Oncologia de Coimbra de Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro

PORTUGAL

ILHAS
AÇORES

Açores regional cancer patient registry (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores

PORTUGAL

NORTE
PORTO

North regional cancer registry (RORENO)
Instituto Português de Oncologia do Porto, EPE / IPOFG - CRO Porto
Registo Oncológico Regional do Norte

PORTUGAL

NORTE
VILA NOVA DE GAIA

Vila Nova de Gaia regional cancer registry (ROG)
Centro Hospitalar de Vila Nova de Gaia
Registo de Cancro (ROG)

PORTUGAL

SUL
LISBOA

Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Português de Oncologia - Centro de Lisboa
Registo Oncológico Regional Sul

SLOVENIË

SLOVENIA
LJUBLJANA

Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia

SLOWAKIJE

Bratislavsky kraj
BRATISLAVA

National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry

SPANJE

Comunidad Valenciana
VALENCIA

SPANJE

Madrid
MADRID

ECEMC: Registry of the Spanish Collaborative Study of Congenital Malformations
ISCIII - Instituto de Salud Carlos III
Centro de Investigación sobre Anomalías Congénitas

SPANJE

Madrid
MADRID

BioNER: Biobank of the Institute of Rare Diseases Research/Institute of Health Carlos III
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

SPANJE

País Vasco
BARAKALDO

Gefinancierd door een IRDiRC-lidBasque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco

ZUID-KOREA

KOREA, REPUBLIC OF
SEOUL

Gefinancierd door een IRDiRC-lidKorean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory

ZWEDEN

Stockholms läns landsting
STOCKHOLM

Swedish Childhood Cancer Registry
Astrid Lindgren Children's Hospital - Karolinska
Pediatric Oncology

ZWITSERLAND

Suisse Alémanique
BERN

Swiss Childhood Cancer Registry
Institute of Social and Preventive Medicine (ISPM)

Netwerken van registers en biobanken

DUITSLAND

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
  • Institut für Krebsepidemiologie e.V.
  • Registerstelle Krebsregister Schleswig-Holstein
  • ITALIË

    LIGURIA
    GENOVA

    TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • Centro di diagnostica genetica e biochimica delle malattie metaboliche