As doenças raras são raras, mas os doentes
com doenças raras são muito numerosos

• • ALEMANHA
  • Baden-Württemberg
  • FREIBURG
  • ESID: European registry of primary immunodeficiencies
  • Universitätsklinikum Freiburg
  • ESID Online Datenbank
  • Mais detalhes
• • ALEMANHA
  • Baden-Württemberg
  • FREIBURG
  • PID-NET: National registry of primary immunodeficiencies
  • Universitätsklinikum Freiburg
  • ESID Online Datenbank
  • Mais detalhes
• • ALEMANHA
  • Bayern
  • MÜNCHEN
  • PID-NET: Decentral National Biomaterial Bank from patients with Primary Immunodeficiency Syndromes
  • LMU Klinikum der Universität München - Campus Innenstadt
  • Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital
  • Mais detalhes
• • AUSTRIA
  • TIROL
  • INNSBRUCK
  • Austrian Country Node of the Human Variome Project (HVP)
  • Medizinische Universität Innsbruck
  • Sektion Humangenetik
  • Mais detalhes
• • BELGICA
  • ARRONDISSEMENT BRUSSELS-CAPITAL
  • BRUSSELS
  • Belgian registry of primary immunodeficiencies - contributes to the ESID European registry
  • Erasme Hospital - ULB
  • Unité de traitment des immunodeficiences
  • Mais detalhes
• • BELGICA
  • OOST-VLAANDEREN
  • GENT
  • Tissue samples of patients with primary immune deficiencies
  • Ghent University Hospital - UZGent
  • Clinical Immunology Research Lab
  • Mais detalhes
• • BELGICA
  • VLAAMS BRABANT
  • LEUVEN
  • Belgian registry of primary immunodeficiencies - contributes to the ESID European registry
  • University Hospitals Leuven - Gasthuisberg
  • Laboratory for Experimental Immunology
  • Mais detalhes
• • BULGARIA
  •  South-West region
  • SOFIA
  • National registry of patients with primary immunodeficiencies (PID) - BG
  • Alexandrovska University Hospital
  • Mais detalhes
• • DINAMARCA
  • Sjælland
  • COPENHAGEN
  • Mendelian cytogenetics network online database
  • The Panum Institute-University of Copenhagen
  • Department of Cellular and Molecular Medicine
  • Mais detalhes
• • ESPANHA
  • Baleares
  • PALMA DE MALLORCA
  • REDIP: Spanish registry of primary immunodeficiencies - contributes to the ESID European registry
  • Hospital Universitario Son Espases
  • Servicio de Inmunología
  • Mais detalhes
• • ESTONIA
  • Tartu
  • TARTU
  • Biobank of the Estonian genome center
  • Tartu University Hospital
  • Centre of Genetics - United laboratories
  • Mais detalhes
• • FINLANDIA
  • Finland
  • TAMPERE
  • CFIbase: Mutation registry for Factor I deficiency (previously known as IFbase)
  • University of Tampere
  • Institute of Medical Technology
  • Mais detalhes
• • FRANCA
  • ILE-DE-FRANCE
  • PARIS
  • CEREDIH: French primary immunodeficiencies registry
  • CHU Paris - Hôpital Necker - Enfants Malades
  • Registre français des déficits immunitaires héréditaires
  • Mais detalhes
• • MARROCOS
  • Rabat
  • RABAT
  • MoHuMuDa : Moroccan Human Mutation Database
  • Institut National d'Hygiène
  • Département de génétique médicale
  • Mais detalhes
• • POLONIA
  • Warszawa
  • WARSAW
  • Polish registry of primary immunodeficiencies - contributes to the ESID European registry
  • The Children's Memorial Health Institute CMHI (IP-CZD)
  • Klinika Immunologii
  • Mais detalhes
• • PORTUGAL
  • NORTE
  • PORTO
  • REPORID - Registo Português de imunodeficiências primárias
  • Centro Hospitalar do Porto - Hospital Santo António
  • Centro Coordenador do REPORID
  • Mais detalhes
• • REINO UNIDO
  • Greater Manchester
  • MANCHESTER
  • DMuDB: Diagnostic Mutation Database
  • St Mary's Hospital
  • National Genetics Reference Laboratory - Manchester
  • Mais detalhes