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Registos e biobancos

Rheinland-Pfalz
MAINZ
Mainz registry of congenital anomalies - contributes to the EUROCAT network
Universitätsmedizin Mainz
Geburtenregister Mainzer Modell

Sachsen-Anhalt
MAGDEBURG
Centre Saxony-Anhalt registry of congenital anomalies - contributes to the EUROCAT network
Universitätsklinikum Magdeburg A.ö.R
MONZ - Fehlbildungsmonitoring Sachsen-Anhalt

STEIERMARK
GRAZ
Styrian registry of congenital anomalies - contributes to the EUROCAT network
Medizinische Universität Graz
Forschungsverein zur Registrierung steirischer Geburtsfehlbildungen

ANTWERPEN
ANTWERPEN
Antwerpen registry of congenital anomalies - contributes to the EUROCAT network
Provinciaal Instituut voor Hygiëne - Antwerpen
EUROCAT Antwerpen

HAINAUT
GOSSELIES
Hainault and Namur registry of congenital anomalies - contributes to the EUROCAT network
Institut de Pathologie et de Génétique - Gosselies
Centre de Génétique Humaine

Syddanmark
ODENSE
Funen county registry of congenital anomalies - contributes to the EUROCAT network
University of Southern Denmark
Epidemiology department

País Vasco
VITORIA-GASTEIZ
RACAV: Registry of congenital anomalies of the Basque Country (Spain) - contributes to the EUROCAT network
Gobierno Vasco - Departamento de Sanidad y Consumo
Gobierno Vasco. Departamento de Salud

Finland
HELSINKI
Register of Congenital Malformations
National Institute for Health and Welfare
Terveyden ja hyvinvoinnin laitos

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Auvergne registry of congenital anomalies - contributes to the EUROCAT network
CHU de Clermont-Ferrand - Hôpital d'Estaing
Service de génétique

AUVERGNE-RHONE-ALPES
LYON
Rhône-Alpes registry of congenital anomalies - contributes to the EUROCAT network
Registre des Malformations en Rhône Alpes
Registre des Malformations en Rhône Alpes REMERA

ILE-DE-FRANCE
PARIS
Paris registry of congenital anomalies - contributes to the EUROCAT network
CHU Paris Centre - Maternité Port Royal
Equipe EPOPé

OUTRE-MER
FORT DE FRANCE
French West Indies registry of congenital anomalies - contributes to the EUROCAT network
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant
Centre Pluridisciplinaire de Diagnostic Prénatal (CPDP)

OUTRE-MER
SAINT-PIERRE
La Réunion Fench Island registry of congenital anomalies - contributes to the EUROCAT network
CHU de la Réunion - GH Sud Réunion - Saint-Pierre
Unité de génétique médicale Foetopathologie et Oncogénétique

County Cork
CORK
South of Ireland registry of congenital anomalies - contributes to the EUROCAT network
St. Finbarr's Hospital
Department of Public Health

County Dublin
DUBLIN
Dublin registry of congenital anomalies - contributes to the EUROCAT network
Dr. Steeven's Hospital
HSE Registry of Congenital Anomalies (East)

County Kilkenny
KILKENNY
South East of Ireland registry of congenital anomalies - part of BINOCAR and EUROCAT network
Health Service Executive South SE
South East of Ireland registry of congenital anomalies

CAMPANIA
BENEVENTO
Campania registry of congenital anomalies - contributes to the EUROCAT network
A.O.R.N. "Gaetano Rummo"
U.O.C. di Genetica Medica

SICILIA
CATANIA
ISMAC: Sicilian registry of congenital anomalies - contributes to the EUROCAT network
ASMAC
Associazione per la Prevenzione Sociale e per il Trattamento delle Malformazioni Congenite

TOSCANA
PISA
Tuscan Registry of Congenital Anomalies
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Unità di Ricerca Epidemiologia Ambientale e Registri di Patologia

VENETO
PADOVA
North-East of Italy registry of congenital anomalies - contributes to the EUROCAT network
Azienda Ospedaliera di Padova
U.O.C. Genetica Clinica ed Epidemiologica

MALTA
G'MANGIA
MALTA CONGENITAL ANOMALIES REGISTRY (MCAR) - it contributes to EUROCAT
Ministry for Health
Directorate of Health Information and Research

Groningen
GRONINGEN
EUROCAT Northern Netherlands - contributes to the international EUROCAT network
UMCG - Universitair Medisch Centrum Groningen
Afdeling Genetica

Poznan
POZNAN
PRCM: Polish registry of congenital malformations - contributes to the EUROCAT network
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej

SUL
LISBOA
RENAC - Portuguese registry of congenital anomalies (contributes to the EUROCAT network)
Instituto Nacional de Saúde Dr. Ricardo Jorge - Lisboa
Departamento de Epidemiologia

Avon
BRISTOL
SWCAR - South West congenital anomalies registry - part of BINOCAR and EUROCAT network
St Michael's Hospital
South West Congenital Anomaly Register

Merseyside
LIVERPOOL
Merseyside and Cheshire registry of congenital anomalies -part of BINOCAR and EUROCAT network
Liverpool Women's NHS Foundation Trust
Mersey Perinatal Epidemiology Unit, Department of Obstetrics & Gynaecology

Strathclyde
GLASGOW
Glasgow registry of congenital anomalies - part of BINOCAR and EUROCAT network
Royal Hospital for Sick Children
Paediatric Epidemiology & Community Health (PEACH) Unit

West Glamorgan
NEWPORT
National Congenital Anomaly System (NCAS) - part of BINOCAR and EUROCAT network
Office for National Statistics
National Congenital Anomaly System (NCAS)

Suisse Romande
LAUSANNE
EUROCAT (Switzerland, Vaud) - Registry of congenital malformations of canton Vaud
Hôpital Nestlé - CHUV
EUROCAT, Switzerland, Vaud

Bayern
ERLANGEN
EEBB: European Epilepsy Brain Bank
Universitätsklinikum Erlangen - Kopfkliniken
Neuropathologisches Institut

Bayern
ERLANGEN
German epilepsy registry
Universitätsklinikum Erlangen - Kopfkliniken
Neuropathologisches Institut

Nordrhein-Westfalen
BONN
Brain-Net - brain tissue bank Bonn (epilepsy, brain tumor)
Universitätsklinikum Bonn
Hirntumor-Referenzzentrum der DGNN

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ENRAH: European alternating hemiplegia and rare epilepsies registry in childhood
Secretariat Brussels, Postbus 10009
European Network for Research on Alternating Hemiplegia

Niedersachsen
GÖTTINGEN
ESNEK - Rare paediatric neurological disease registry Germany
Universitätsmedizin Göttingen
Geschäftsstelle der ESNEK

Nordrhein-Westfalen
MÜNSTER
Brain-Net - brain tissue bank Munster (pediatric neuropathology)
Institut für Neuropathologie der Medizinischen Fakultät Münster
Institut für Neuropathologie

TIROL
INNSBRUCK
Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck

KOREA, REPUBLIC OF
SEOUL
Korean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory

Sjælland
COPENHAGEN
Mendelian cytogenetics network online database
The Panum Institute-University of Copenhagen
Department of Cellular and Molecular Medicine

Comunidad Valenciana
VALENCIA
CIBERER Biobank (Biobank of rare diseases)
FISABIO
CIBERER BIOBANK

Madrid
MADRID
BioNER: Biobank of the Institute of Rare Diseases Research/Institute of Health Carlos III
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco

Tartu
TARTU
Biobank of the Estonian genome center
Tartu University Hospital
Centre of Genetics - United laboratories

LIGURIA
GENOVA
Cell line and DNA Biobank from patients affected by genetic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

LIGURIA
GENOVA
Telethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

Rabat
RABAT
Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale

Madrid
MADRID
ECEMC: Registry of the Spanish Collaborative Study of Congenital Malformations
ISCIII - Instituto de Salud Carlos III
Centro de Investigación sobre Anomalías Congénitas
Redes de registos e biobancos

Antrim and Newtownabbey
NEWTOWNABBEY
EUROCAT: European surveillance of congenital anomalies
University of Ulster
Room 12 L09

Tyne & Wear
NEWCASTLE UPON TYNE
BINOCAR: British Isles network of congenital anomaly registries
Regional Maternity Survey Office
British Isles Network of Congenital Anomaly Registers (BINOCAR)

Bayern
MÜNCHEN
Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)
Zentrum für Neuropathologie und Prionforschung der LMU München

LIGURIA
GENOVA