Rare diseases are rare, but
rare disease patients are numerous

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
  • More information
• • BELGIUM
  • ANTWERPEN
  • MELSELE
  • BOKS - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte vzw - Association belge pour les enfants et adultes atteints d'une maladie métabolique asbl
  • More information
• • CZECH REPUBLIC
  • Capital City Prague
  • PRAHA
  • National Association for PKU and other inherited metabolic disorder
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• • FRANCE
  • AUVERGNE
  • JUSSAC
  • Les Enfants du Jardin - Association for Parents of children with inherited metabolic diseases treated by hypo-protein diets
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• • FRANCE
  • ILE-DE-FRANCE
  • CHATEAU LANDON
  • Les maux d'enfants
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• • FRANCE
  • RHONE-ALPES
  • SAINTE-FOY-LES-LYON
  • A Tire d'Aile - Soutien moral et financier aux familles touchées par une maladie héréditaire du métabolisme
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• • GERMANY
  • Berlin
  • BERLIN
  • VfASS - Verein für angeborene Stoffwechselstörungen e.V.
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• • GREECE
  • ATTIKI
  • ATHENS
  • PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases
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• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
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• • ITALY
  • LOMBARDIA
  • MILANO
  • APMMC - Associazione Prevenzione Malattie Metaboliche Congenite
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• • ITALY
  • LOMBARDIA
  • MONZA
  • ABM - Associazione per la Tutela del Bambino con Malattie Metaboliche
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• • ITALY
  • PIEMONTE
  • TORINO
  • META - Associazione Malattie Metaboliche Ereditarie del Piemonte e Valle d'Aosta
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• • ITALY
  • SICILIA
  • PALERMO
  • IRIS - Associazione Siciliana Malattie Ereditarie Metaboliche Rare
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• • ITALY
  • TOSCANA
  • FIRENZE
  • AMMeC - Associazione Malattie Metaboliche Congenite - ONLUS
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• • ITALY
  • VENETO
  • PADOVA
  • AISMME - Associazione Italiana Sostegno Malattie Metaboliche Ereditarie ONLUS
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• • ITALY
  • VENETO
  • PONTE SAN NICOLÒ
  • COMETA ASMME - Associazione Studio Malattie Metaboliche Ereditarie - ONLUS
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• • NETHERLANDS
  • Overijsel
  • ZWOLLE
  • VKS - Volwassenen, Kinderen en Stofwisselingsziekten
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• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
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• • POLAND
  • Warszawa
  • RASZYN
  • Polish PKU and Rare Diseases Association "Ars Vivendi"
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• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
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• • PORTUGAL
  • NORTE
  • PORTO
  • APOFEN - Associação Portuguesa de Fenilcetonúria e Outras Doenças Metabólicas
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• • PORTUGAL
  • SUL
  • SEIXAL
  • Portuguese Association of CDG Syndrome and other rare metabolic disorders
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• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
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• • SPAIN
  • Andalucía
  • SEVILLA
  • Asociación Fenilcetonuria y Otros Trastornos del Metabolismo de Andalucia
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• • SPAIN
  • Castilla - La Mancha
  • CAMPO DE CRIPTANA
  • Castilian-Manchego inborn errors of metabolism association
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• • UNITED KINGDOM
  • Cheshire
  • CREWE
  • CLIMB National Information Centre for Metabolic Diseases
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