There is no disease so rare
that it does not deserve attention

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
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• • AUSTRIA
  • OBERÖSTERREICH
  • BREITENAICH
  • Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankungen
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• • BELGIUM
  • ANTWERPEN
  • MELSELE
  • BOKS - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte vzw - Association belge pour les enfants et adultes atteints d'une maladie métabolique asbl
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• • BELGIUM
  • ARRONDISSEMENT BRUSSELS-CAPITAL
  • BRUSSELS
  • Vaincre les maladies Lysosomales Belgique asbl [VML Belgique]
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• • BULGARIA
  •  South-East region
  • SLIVEN
  • National Mucopolysaccharidosis association
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• • CZECH REPUBLIC
  • Capital City Prague
  • PRAHA
  • National Association for PKU and other inherited metabolic disorder
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• • CZECH REPUBLIC
  • Capital City Prague
  • PRAHA
  • META - association of patients with storage disorders
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• • CZECH REPUBLIC
  • Olomouc
  • OLOMOUC
  • The Society for Mucopolysaccharidose Diseases
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• • FINLAND
  • Finland
  • TAMPERE
  • The Finnish Association for Persons with Intellectual Disabilities
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• • FRANCE
  • AUVERGNE
  • JUSSAC
  • Les Enfants du Jardin - Association for Parents of children with inherited metabolic diseases treated by hypo-protein diets
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• • FRANCE
  • ILE-DE-FRANCE
  • CHATEAU LANDON
  • Les maux d'enfants
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• • FRANCE
  • ILE-DE-FRANCE
  • MASSY
  • VML - Vaincre les Maladies Lysosomales
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• • FRANCE
  • RHONE-ALPES
  • SAINTE-FOY-LES-LYON
  • A Tire d'Aile - Soutien moral et financier aux familles touchées par une maladie héréditaire du métabolisme
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• • GERMANY
  • Bayern
  • ASCHAFFENBURG
  • MPS - Gesellschaft für Mukopolysaccharidosen e.V.
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• • GERMANY
  • Niedersachsen
  • WOLFSBURG
  • LIBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.
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• • GERMANY
  • Nordrhein-Westfalen
  • SCHLOß HOLTE-STUKENBROCK
  • ABE - Angeborene-Bindegewebs-Erkrankungen e.V.
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• • GREECE
  • ATTIKI
  • ATHENS
  • PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases
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• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
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• • GREECE
  • ATTIKI
  • ATHENS
  • Greek Gaucher and other lysosomal diseases association
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• • HUNGARY
  • Közép-Magyarország
  • BUDAPEST
  • MMT - Magyar Mukopoliszaccharidózis Társaság
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• • IRELAND
  • County Limerick
  • BALLYNEETY
  • Irish Society for Mucopolysaccharide Diseases
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• • IRELAND
  • Leinster
  • DUBLIN
  • Inclusion Ireland
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• • ITALY
  • LOMBARDIA
  • MILANO
  • APMMC - Associazione Prevenzione Malattie Metaboliche Congenite
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• • ITALY
  • LOMBARDIA
  • MONZA
  • ABM - Associazione per la Tutela del Bambino con Malattie Metaboliche
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• • ITALY
  • LOMBARDIA
  • SENAGO
  • AIMPS - Associazione Italiana Mucopolisaccaridosi e Malattie Affini - ONLUS
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• • ITALY
  • PIEMONTE
  • TORINO
  • META - Associazione Malattie Metaboliche Ereditarie del Piemonte e Valle d'Aosta
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• • ITALY
  • SICILIA
  • PALERMO
  • IRIS - Associazione Siciliana Malattie Ereditarie Metaboliche Rare
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• • ITALY
  • TOSCANA
  • FIRENZE
  • AMMeC - Associazione Malattie Metaboliche Congenite - ONLUS
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• • ITALY
  • VENETO
  • PADOVA
  • AISMME - Associazione Italiana Sostegno Malattie Metaboliche Ereditarie ONLUS
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• • ITALY
  • VENETO
  • PONTE SAN NICOLÒ
  • COMETA ASMME - Associazione Studio Malattie Metaboliche Ereditarie - ONLUS
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• • MOROCCO
  • Rabat
  • RABAT
  • EVMLM - Espoir Vaincre les Maladies Lysosomales au Maroc
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• • NETHERLANDS
  • Overijsel
  • ZWOLLE
  • VKS - Volwassenen, Kinderen en Stofwisselingsziekten
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• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
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• • POLAND
  • Warszawa
  • GLOSKOW
  • Polish society of mucopolysaccharidoses and rare diseases
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• • POLAND
  • Warszawa
  • WARSAW
  • Foundation UMIEC POMAGAC for Mucopolysaccharide Disease
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• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
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• • PORTUGAL
  • NORTE
  • PORTO
  • APOFEN - Associação Portuguesa de Fenilcetonúria e Outras Doenças Metabólicas
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• • PORTUGAL
  • SUL
  • LISBOA
  • APL - Associação Portuguesa das Doenças do Lisosoma
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• • PORTUGAL
  • SUL
  • SEIXAL
  • Portuguese Association of CDG Syndrome and other rare metabolic disorders
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• • ROMANIA
  • BACAU
  • BACAU
  • Organizatia trebuie- Bacau
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• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
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• • SPAIN
  • Andalucía
  • SEVILLA
  • Asociación Fenilcetonuria y Otros Trastornos del Metabolismo de Andalucia
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• • SPAIN
  • Andalucía
  • SEVILLA
  • ADAC - Asociación para las Deficiencias que afectan al Crecimiento y al Desarrollo
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• • SPAIN
  • Castilla - La Mancha
  • CAMPO DE CRIPTANA
  • Castilian-Manchego inborn errors of metabolism association
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• • SPAIN
  • Cataluña
  • LA POBLA DE CLARAMUNT
  • MPS España - Asociación de las Mucopolisacaridosis y síndromes relacionados
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• • SWEDEN
  • Stockholms läns landsting
  • STOCKHOLM
  • Swedish Association for Persons with Neurological Disabilities
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• • SWEDEN
  • Västra Götalandsregionen
  • HISINGSBACKA
  • Swedish MPS society
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• • SWITZERLAND
  • Suisse Alémanique
  • EGLISAU
  • MPS Schweiz -Verein Mukopolysaccharidosen Schweiz
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• • SWITZERLAND
  • Suisse Alémanique
  • ZÜRICH
  • Swiss lysosomal diseases
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• • SWITZERLAND
  • Suisse Romande
  • ATTALENS
  • VML Suisse - Vaincre les Maladies Lysosomales Suisse
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• • UNITED KINGDOM
  • Buckinghamshire
  • AMERSHAM
  • MPS Society - The Society for Mucopolysaccharide Diseases
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• • UNITED KINGDOM
  • Cheshire
  • CREWE
  • CLIMB National Information Centre for Metabolic Diseases
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• • UNITED KINGDOM
  • West Glamorgan
  • CARMARTHEN
  • Cerebra
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• • UNITED KINGDOM
  • West Yorkshire
  • HUDDERSFIELD
  • The Nerve Centre
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