Rare diseases are rare, but
rare disease patients are numerous

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
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• • AUSTRIA
  • OBERÖSTERREICH
  • LINZ
  • MARATHON-Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern
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• • AUSTRIA
  • WIEN
  • WIEN
  • Österreichische Gesellschaft für Muskelkranke
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• • BELGIUM
  • HAINAUT
  • MONS
  • ABMM - Association Belge contre les Maladies neuro-Musculaires asbl
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• • BELGIUM
  • LIMBURG
  • HASSELT
  • NEMA - Vlaamse Vereniging Neuromusculaire aandoeningen vzw
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• • BULGARIA
  •  South-West region
  • SOFIA
  • BANMD - Bulgarian Association for Neuromuscular Diseases
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• • CANADA
  • Ontario
  • PEFFERLAW
  • CNA - Canadian Neuropathy Association
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• • CYPRUS
  • Cyprus
  • NICOSIA
  • MDA - Cyprus Muscular Dystrophy Association
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• • FINLAND
  • Finland
  • TURKU
  • The Finnish Neuromuscular Disorders Association
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• • FRANCE
  • ILE-DE-FRANCE
  • EVRY
  • AFM - Association Française contre les Myopathies
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• • GERMANY
  • Baden-Württemberg
  • FREIBURG
  • DGM - Deutsche Gesellschaft für Muskelkranke e.V.
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• • GERMANY
  • Hamburg
  • HAMBURG
  • DMH - Deutsche Muskelschwund-Hilfe e.V.
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• • GERMANY
  • Niedersachsen
  • WOLFSBURG
  • LIBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.
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• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
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• • IRELAND
  • Leinster
  • DUBLIN
  • Inclusion Ireland
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• • ISRAEL
  • ISRAEL
  • REHOVOT
  • MESHI - Support group of families with members affected by a neuromuscular atrophy disease
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• • ITALY
  • VENETO
  • PADOVA
  • UILDM - Unione Italiana Lotta alla Distrofia Muscolare
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• • LUXEMBOURG
  • LUXEMBOURG
  • TUNTAGE
  • ALAN - Association Luxembourgeoise d'aide pour les personnes Atteintes de maladies Neuro-musculaires et de maladies rares
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• • MOROCCO
  • Rabat
  • RABAT
  • AMM - Association marocaine de lutte contre les myopathies
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• • NETHERLANDS
  • Utrecht
  • BAARN
  • VSN - Vereniging Spierziekten Nederland
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• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
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• • POLAND
  • Szczecin
  • SZCZECIN
  • Fundacja Pomocy Chorym na Zanik Miesni
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• • POLAND
  • Warszawa
  • WARSAW
  • Polskie Towarzystwo Chorob Nerwowo-Miesniowych
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• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
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• • PORTUGAL
  • NORTE
  • PORTO
  • APN - Associação Portuguesa de Doentes Neuromusculares
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• • PORTUGAL
  • SUL
  • LISBOA
  • Associação Portuguesa de Miastenia Gravis, Doenças Neuromusculares e Fibromialgia
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• • ROMANIA
  • BACAU
  • BACAU
  • Organizatia trebuie- Bacau
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• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
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• • SLOVAKIA
  • Bratislavsky kraj
  • BRATISLAVA
  • OMD v SR - Slovakian muscular dystrophy patients organisation
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• • SPAIN
  • Cataluña
  • BARCELONA
  • Federación ASEM - Federación Española de Enfermedades Neuromusculares
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• • SWEDEN
  • Stockholms läns landsting
  • STOCKHOLM
  • Swedish Association for Persons with Neurological Disabilities
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• • SWITZERLAND
  • Suisse Alémanique
  • ZÜRICH
  • Schweizerische Muskelgesellschaft
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• • SWITZERLAND
  • Suisse Romande
  • YVERDON
  • ASRIM - Association de la Suisse Romande et Italienne contre les Myopathies
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• • UNITED KINGDOM
  • Strathclyde
  • GLASGOW
  • MND (Motor Neuron Disease) Scotland
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• • UNITED KINGDOM
  • Warwickshire
  • SHIPSTON ON STOUR
  • The SMA Trust
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• • UNITED KINGDOM
  • Warwickshire
  • STRATFORD UPON AVON
  • JTSMA - Jennifer Trust for Spinal Muscular Atrophy
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• • UNITED KINGDOM
  • West Glamorgan
  • CARMARTHEN
  • Cerebra
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• • UNITED KINGDOM
  • West Yorkshire
  • HUDDERSFIELD
  • The Nerve Centre
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