Rare diseases are rare, but
rare disease patients are numerous

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
  • More information
• • AUSTRIA
  • WIEN
  • WIEN
  • Verein Aktion Kinderherz Österreich
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • ELEWIJT
  • NOONAN-oudercontactgroep
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • AboutFace
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Finnish Cardiomyopathy Patient Association
  • More information
• • FINLAND
  • Finland
  • TAMPERE
  • The Finnish Association for Persons with Intellectual Disabilities
  • More information
• • FRANCE
  • CENTRE
  • MONTBOISSIER
  • Ligue contre la Cardiomyopathie
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • ASNIERES
  • AG - Association Grandir - association de parents d'enfants ayant des problèmes de croissance
  • More information
• • FRANCE
  • RHONE-ALPES
  • LYON
  • Réseau-Lucioles
  • More information
• • GERMANY
  • Bayern
  • MAINSTOCKHEIM
  • JEMAH - Bundesvereinigung JEMAH e.V. (Jugendliche und Erwachsene mit angeborenem Herzfehler)
  • More information
• • GERMANY
  • Niedersachsen
  • BRAUNSCHWEIG
  • HERZKIND e.V. - Verein zur Förderung der Beratung und Betreuung herzkranker Kinder und ihrer Familien
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • AACHEN
  • BVHK - Bundesverband Herzkranker Kinder e.V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • OBERHAUSEN
  • IDHK - Interessengemeinschaft Das herzkranke Kind e. V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • WÜRSELEN
  • Noonan Kinder Deutschland e.V.
  • More information
• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
  • More information
• • IRELAND
  • County Dublin
  • BALLSBRIDGE
  • Cardiomyopathy Support Group
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • NF Ireland - Neurofibromatosis Association of Ireland
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Irish Heart Foundation
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Inclusion Ireland
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • ANGELI NOONAN - Associazione Italiana Sindrome di Noonan - ONLUS
  • More information
• • ITALY
  • PIEMONTE
  • TORINO
  • Fedra ONLUS
  • More information
• • NETHERLANDS
  • Noord-Holland
  • HOOFDDORP
  • BVKM - Little People association
  • More information
• • NETHERLANDS
  • Zuid-Holland
  • DEN HAAG
  • De Hart & Vaatgroep
  • More information
• • NETHERLANDS
  • Zuid-Holland
  • DEN HAAG
  • Stichting Noonan Syndroom
  • More information
• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
  • More information
• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
  • More information
• • ROMANIA
  • BACAU
  • BACAU
  • Organizatia trebuie- Bacau
  • More information
• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
  • More information
• • SERBIA
  • Serbia
  • BELGRADE
  • ZVONCICA - Childhood cancer parent organisation
  • More information
• • SPAIN
  • Andalucía
  • SEVILLA
  • ADAC - Asociación para las Deficiencias que afectan al Crecimiento y al Desarrollo
  • More information
• • SPAIN
  • Cataluña
  • EL PRAT DEL LLOBREGAT
  • Syndrom - organisation of patients with minor genetic alteration
  • More information
• • SWEDEN
  • Västra Götalandsregionen
  • MÖLNDAL
  • Swedish Noonan Association
  • More information
• • SWITZERLAND
  • Suisse Alémanique
  • BASEL
  • Swiss support group for people with short stature
  • More information
• • SWITZERLAND
  • Suisse Romande
  • LEYTRON
  • Coeur Battant - Family patient organisation for children with cardiopathies
  • More information
• • UNITED KINGDOM
  • Buckinghamshire
  • CHESHAM
  • The Cardiomyopathy Association
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • CHF - Children's Heart Federation
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • HeartLine Association
  • More information
• • UNITED KINGDOM
  • Merseyside
  • WIRRAL
  • CHA - Children's Heart Association
  • More information
• • UNITED KINGDOM
  • Strathclyde
  • GLASGOW
  • Confer
  • More information