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Patient organisations

CANADA

Ontario-TORONTO

Little People of Ontario

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FRANCE

ILE-DE-FRANCE-PARIS

APPT - Association des Personnes de Petite Taille

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ITALY

SICILIA-SIRACUSA

AISAR - Associazione Italiana Sindromi Autoinfiammatorie Rare - ONLUS

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SPAIN

Comunidad Valenciana-VALENCIA

FMF Espańa - Asociación de enfermos de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios de Espańa

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SWITZERLAND

Suisse Alémanique-BASEL

VKM - Verein Kleinwüchsiger Menschen der Schweiz

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SWITZERLAND

Suisse Romande-MARACON

ARPPT - Association Romande des Personnes de Petite Taille

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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AUSTRIA

SALZBURG-MARIA ALM

Österreichische Rheumaliga

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GERMANY

Bayern-ERDWEG

Bundesselbsthilfevereinigung für Kinder, Jugendliche und Erwachsene mit seltenen, chronischen Skelett-Erkrankungen e.V.

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Rheuma-Liga Bundesverband e.V.

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

CAMPANIA-PONTECAGNANO FAIANO

AMAReC - Associazione Malati Reumatici Campania ONLUS

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ITALY

PUGLIA-LECCE

APMAR - Associazione Persone con Malattie Reumatiche ONLUS

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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PORTUGAL

SUL-LISBOA

LPCDR - Liga Portuguesa Contra as Doenças Reumáticas

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWEDEN

Stockholms läns landsting-STOCKHOLM

Reumatikerförbundet

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SWITZERLAND

Suisse Italienne-BELLINZONA

Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-GENČVE

Ligue Genevoise contre le Rhumatisme

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Greater London-LONDON

GDUK- Genetic Disorders UK

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AUSTRALIA

New South Wales-PENRITH

IDFA - Immune Deficiencies Foundation Australia

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AUSTRIA

NIEDERÖSTERREICH-RIEDERBERG

Österreichische Selbsthilfegruppe für primäre Immundefekte (ÖSPID)

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AUSTRIA

WIEN-WIEN

SHG Rheumalis - Selbsthilfegruppe für Eltern rheumakranker Kinder und Jugendlicher

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BELGIUM

HAINAUT-ESCANAFFLES

BOPPI - Belgian Organisation for Patients with Primary Immunodeficiency

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CYPRUS

Cyprus-NICOSIA

Cyprus League Against Rheumatism

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DENMARK

Sjćlland-SKOVLUNDE

The Danish Association for Immunodeficiencies

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FINLAND

Finland-ESPOO

Immuunipuutospotilaiden yhdistys ry.

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FRANCE

GRAND-EST-VERDUN

IRIS - Immuno-déficience primitive : Recherche, Information, Soutien

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FRANCE

NOUVELLE AQUITAINE-TOULENNE

AANAA - Association Antoine, Nubia, Aline et les Autres

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GERMANY

Bayern-SCHNAITSEE

dsai - Deutsche Selbsthilfe Angeborene Immundefekte e.V.

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GERMANY

Nordrhein-Westfalen-SENDENHORST

Bundesverband Kinderrheuma e.V.

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GREECE

ATTIKI-ATHENS

Armonia - Association of Greek friends for paediatric immunology, primary immunodeficiencies (Harmony)

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ITALY

LAZIO-ROMA

PRO IDPI - Pro ImmunoDeficienze Primitive Italiane

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ITALY

LOMBARDIA-BRESCIA

AIP - Associazione Immunodeficienze Primitive - ONLUS

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ITALY

VENETO-VENEZIA

AIFP - Associazione Italiana Febbri Periodiche

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MOROCCO

Casablanca-CASABLANCA

HAJAR - Association de soutien aux patients atteints de déficits immunitaires primitifs

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NETHERLANDS

Noord-Brabant-RAAMSDONKSVEER

SAS - Stichting voor Afweerstoornissen

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POLAND

Lodz-LODZ

Immunoprotect - Stowarzyszenie na rzecz osob z niedoborami odpornosci

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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PORTUGAL

NORTE-VILA DO CONDE

A.P.D.I.P - Associaçăo Portuguesa de Doentes com Imunodeficięncia Primária

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Comunidad Valenciana-VALENCIA

ASPANIJER - Asociación de Padres de Nińos y Jóvenes con Enfermedades Reumáticas de la Comunidad Valenciana

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SPAIN

Madrid-MADRID

AEDIP - Asociación Espańola de Déficits Inmunitarios Primarios

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SWEDEN

Örebro läns landsting-ÖREBRO

Primär immunbristorganisationen

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SWITZERLAND

Suisse Alémanique-ZÜRICH

SVAI Schweizerische Vereinigung für Angeborene Immunodefekte - Association Suisse pour Immuno-Déficience Primitive - Associazione Svizzera per Immunodeficienze Primitive

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UNITED KINGDOM

Cornwall-DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies

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UNITED KINGDOM

Greater London-LONDON

PID UK - Primary Immunodeficiency UK

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Alliances and umbrella organisations

UNITED KINGDOM

Cornwall

DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies Network

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