Rare diseases are rare, but
rare disease patients are numerous

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • FFB- Foundation Fighting Blindness
  • More information
• • CANADA
  • Québec
  • GREENFIELD PARK
  • Association québécoise des parents d'enfants handicapés visuels
  • More information
• • DENMARK
  • Jylland
  • SILKEBORG
  • The Danish Association for Albinism
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Finnish Central Organisation for Skin Patients
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Ihoyhdistys
  • More information
• • FRANCE
  • BRETAGNE
  • RENNES
  • Genespoir - Association Française des Albinismes
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • ANPEA - Association Nationale des Parents d'Enfants Aveugles ou gravement déficients visuels avec ou sans handicaps associés
  • More information
• • FRANCE
  • LORRAINE
  • CUVRY
  • FFP - Fédération Française de la Peau
  • More information
• • GERMANY
  • Baden-Württemberg
  • STUTTGART
  • NOAH Albinismus Selbsthilfegruppe e.V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • DÜSSELDORF
  • Bund zur Förderung Sehbehinderter e.V.
  • More information
• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
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• • GREECE
  • ATTIKI
  • ATHENS
  • HRS - Hellenic Retina Society
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • NCBI - National Council for the Blind Ireland
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• • ITALY
  • LOMBARDIA
  • GRANDATE
  • Albinit
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• • ITALY
  • VENETO
  • VENEZIA
  • KÓROS - Associazione per Promuovere la Ricerca e la Prevenzione delle Malattie Oculari Infantili - ONLUS
  • More information
• • LUXEMBOURG
  • LUXEMBOURG
  • CANACH
  • ADV - Association for the visually impaired
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• • MOROCCO
  • Rabat
  • RABAT
  • AMDG - Association Marocaine des Génodermatoses
  • More information
• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
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• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
  • More information
• • PORTUGAL
  • SUL
  • LISBOA
  • ARP - Associação de Retinopatia de Portugal
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• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
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• • SPAIN
  • Comunidad Valenciana
  • VALENCIA
  • ALBA - Asociación de Ayuda a Personas con Albinismo
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• • UNITED KINGDOM
  • Lancashire
  • BURNLEY
  • Albinism Fellowship
  • More information