There is no disease so rare
that it does not deserve attention

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
  • More information
• • AUSTRIA
  • WIEN
  • WIEN
  • Epilepsie Dachverband Österreich
  • More information
• • BELGIUM
  • ANTWERPEN
  • BERCHEM
  • VAGA - Vereniging voor Aangeboren GelaatsAfwijkingen vzw
  • More information
• • BELGIUM
  • ARRONDISSEMENT BRUSSELS-CAPITAL
  • BRUSSELS
  • LFBE - Ligue francophone belge contre l'Epilepsie asbl
  • More information
• • BELGIUM
  • ARRONDISSEMENT BRUSSELS-CAPITAL
  • BRUSSELS
  • Fondation contre le Cancer, Fondation d'utilité publique - Stichting tegen Kanker, Stichting van openbaar nut
  • More information
• • BELGIUM
  • BRABANT WALLON
  • COURT-SAINT-ETIENNE
  • AFLAPA - Association de Parents d'Enfants Nés avec une Fente Labio-Palatine asbl
  • More information
• • BELGIUM
  • OOST-VLAANDEREN
  • EVERGEM
  • Epilepsie-contactgroep IKAROS vzw [Contactgroep Oost-Vlaanderen]
  • More information
• • BELGIUM
  • OOST-VLAANDEREN
  • GENT
  • VLE - Vlaamse Liga tegen Epilepsie vzw
  • More information
• • BELGIUM
  • VLAAMS BRABANT
  • ELEWIJT
  • KKOL - Kinderkanker Leuven Oudervereniging vzw
  • More information
• • BELGIUM
  • WEST-VLAANDEREN
  • KORTRIJK
  • URANUS - Contactgroep voor mensen met epilepsie [Contactgroep West-Vlaanderen]
  • More information
• • CANADA
  • Ontario
  • TORONTO
  • AboutFace
  • More information
• • CANADA
  • Terre-Neuve-et-Labrador
  • ST. JOHN'S
  • CEA - Canadian Epilepsy Alliance
  • More information
• • CYPRUS
  • Cyprus
  • NICOSIA
  • PA.SY.KA.F - The Cyprus Association of Cancer Patients and Friends
  • More information
• • ESTONIA
  • Tallinn
  • TALLINN
  • ECS - Estonian Cancer Society
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Finnish Central Organisation for Skin Patients
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Ihoyhdistys
  • More information
• • FINLAND
  • Finland
  • HELSINKI
  • Finnish Epilepsy Association
  • More information
• • FINLAND
  • Finland
  • TAMPERE
  • The Finnish Association for Persons with Intellectual Disabilities
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • E-F - Epilepsie-France
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • LNCC - Ligue Nationale Contre le Cancer
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • FFRE - Fondation Française pour la Recherche sur l'Epilepsie
  • More information
• • FRANCE
  • LORRAINE
  • CUVRY
  • FFP - Fédération Française de la Peau
  • More information
• • GERMANY
  • Bayern
  • BAD ABBACH
  • SHG Proteus-Syndrom e.V.
  • More information
• • GERMANY
  • Berlin
  • BERLIN
  • Deutsche Epilepsievereinigung e.V.
  • More information
• • GERMANY
  • Hamburg
  • HAMBURG
  • Epilepsie Selbsthilfegruppe Hamburg-Mitte
  • More information
• • GERMANY
  • Niedersachsen
  • WOLFSBURG
  • LIBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • KÖLN
  • Landesverband für Epilepsie Selbsthilfe NRW e.V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • MÜLHEIM AN DER RUHR
  • Bundesverband Angeborene Gefäßfehlbildungen e.V.
  • More information
• • GERMANY
  • Nordrhein-Westfalen
  • WUPPERTAL
  • e.b.e. - Epilepsie Bundes-Elternverband e.V.
  • More information
• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • ARC Cancer Support Centre
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Canteen Ireland- Young People Cancer Support Group
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Irish Cancer Society
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Inclusion Ireland
  • More information
• • ITALY
  • ABRUZZO
  • L'AQUILA
  • AISME - Associazione Italiana Studio Malformazioni Epilessia
  • More information
• • ITALY
  • LAZIO
  • ROMA
  • ALTI - Associazione ''Io, domani'' per la Lotta contro i Tumori Infantili
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • Associazione Italiana Angiodisplasie ed Emangiomi Infantili
  • More information
• • ITALY
  • PIEMONTE
  • TORINO
  • Fedra ONLUS
  • More information
• • LUXEMBOURG
  • LUXEMBOURG
  • BOEVANGE-SUR-ATTERT
  • Een Haerz fir kriibskrank Kanner / Un coeur pour les enfants atteints de cancer
  • More information
• • LUXEMBOURG
  • LUXEMBOURG
  • DUDELANGE
  • AAPE - Assistance Association for people with epilepsy
  • More information
• • MOROCCO
  • Marrakech
  • MARRAKECH
  • AMCEP - Association marocaine contre l'épilepsie
  • More information
• • NETHERLANDS
  • Gelderland
  • EDE
  • EVN - Epilepsie Vereniging Nederland
  • More information
• • NETHERLANDS
  • Utrecht
  • LEUSDEN
  • CMTC-OVM
  • More information
• • NETHERLANDS
  • Utrecht
  • NIEUWEGEIN
  • VOKK - Vereniging Ouders, Kinderen en Kanker
  • More information
• • POLAND
  • Kraków
  • CRACOW
  • KOLIBER - Association for children with cancer
  • More information
• • POLAND
  • Lodz
  • LODZ
  • "Krwinka" Foundation
  • More information
• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
  • More information
• • POLAND
  • Warszawa
  • WARSAW
  • Polish Association for children with epilepsy
  • More information
• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
  • More information
• • ROMANIA
  • BACAU
  • BACAU
  • Organizatia trebuie- Bacau
  • More information
• • ROMANIA
  • BRASOV
  • BRASOV
  • ABC - ASOCIATIA BOLNAVILOR DE CANCER DIN ROMANIA
  • More information
• • ROMANIA
  • BUCURESTI
  • BUCURESTI
  • PAVEL - Association PAVEL (Primind Ajutor Viata Este Luminoasa)
  • More information
• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
  • More information
• • SERBIA
  • Serbia
  • BELGRADE
  • ZVONCICA - Childhood cancer parent organisation
  • More information
• • SPAIN
  • Cataluña
  • EL PRAT DEL LLOBREGAT
  • Syndrom - organisation of patients with minor genetic alteration
  • More information
• • SPAIN
  • Comunidad Valenciana
  • VALENCIA
  • ASPANION - Association of parents with children with cancer from the Comunidad Valenciana
  • More information
• • SWEDEN
  • Stockholms läns landsting
  • STOCKHOLM
  • Swedish Association for Persons with Neurological Disabilities
  • More information
• • SWITZERLAND
  • Suisse Romande
  • LAUSANNE
  • ARFEC - Association Romande des Familles d'Enfants atteints d'un Cancer
  • More information
• • UNITED KINGDOM
  • Buckinghamshire
  • GERRARDS CROSS
  • NSE - The National Society for Epilepsy
  • More information
• • UNITED KINGDOM
  • East Sussex
  • BEXHILL-ON-SEA
  • The PSF UK - Proteus Syndrome Foundation UK
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • CLIC Sargent
  • More information
• • UNITED KINGDOM
  • Greater London
  • LONDON
  • TCT - Teenage Cancer Trust
  • More information
• • UNITED KINGDOM
  • Kent
  • CANTERBURY
  • Rarer Cancers Foundation
  • More information
• • UNITED KINGDOM
  • Kent
  • HERNE BAY
  • Epilepsy HERE - Help, Education and Research for Epilepsy
  • More information
• • UNITED KINGDOM
  • Oxfordshire
  • WANTAGE
  • Epilepsy Bereaved
  • More information
• • UNITED KINGDOM
  • Staffordshire
  • STAFFORD
  • Proteus Family Network UK
  • More information
• • UNITED KINGDOM
  • Staffordshire
  • STAFFORD
  • CCPA - The Childhood Cancer Parents Alliance (formerly NACCPO)
  • More information
• • UNITED KINGDOM
  • West Glamorgan
  • CARMARTHEN
  • Cerebra
  • More information
• • UNITED KINGDOM
  • West Yorkshire
  • HUDDERSFIELD
  • The Nerve Centre
  • More information
• • UNITED KINGDOM
  • West Yorkshire
  • LEEDS
  • Epilepsy Action
  • More information