The portal for rare diseases and orphan drugs
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ORPHANET DATA
| Diseases | : | 5768 |
| Clinics | : | 4326 |
| Laboratories | : | 4364 |
| Professionals | : | 12548 |
| Daily visitors | : | 15354 |
Improve the quality of medical
care for Rare Diseases.
Provide adapted services
for the rare disease community
care for Rare Diseases.
Provide adapted services
for the rare disease community
- Rare diseases
- Resources directory
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- News
- Latest news across Europe
- Council Recommendation on an action in the field of rare diseases (pdf)
- Opinion of the EESC and the European Parliament on the council rare disease proposal
- Events
- EPPOSI:Partnering for Rare Diseases Therapy Development
- TREAT-NMD/NIH International Conference
- 5th European Conference on Rare Diseases, 13-15 May 2010, Cracow, Poland
- Other events (pdf)
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