The portal for rare diseases and orphan drugs

Rare diseases are rare, but
rare disease patients are numerous

Orphanet directory of services : registration forms

Welcome to Orphanet directory registration service ! Please complete the short questionnaire below ! Thank you in advance.

Are you already registered in Orphanet?

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First Name : Last Name :

E-mail Country

You want to :

Update your already registered activity(ies)
Register your activity(ies)

Type of activity(ies) to be registered :

Expert clinic
Diagnostic tests (medical laboratories)
Quality management information (medical laboratories)
Clinical trial
Research project
Registry, biobank and materials
Platforms
Patient organisation

Rare disease(s)* concerned (if applicable)

* a rare disease is a disease with prevalence less than 1/2000

Please reproduce the text below

You will be contacted soon by e-mail by the Orphanet team in order to proceed to the update and/or to complete the registration stage

Before publication online, all the information will be validated by the Orphanet scientific advisory board according to its procedures.

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Orphanet version 4.9.17 - Last updated: 2013-05-19

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ORPHANET USER SATISFACTION SURVEY 2012 Welcome to the Orphanet User Satisfaction Survey 2012. Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could you take 5 minutes of your time to answer the following questions? Answer the survey