The portal for rare diseases and orphan drugs

There is no disease so rare
that it does not deserve attention

Orphanet Reports Series

Orphanet reports are a serie of texts covering topics relevant to all rare diseases. New reports are regularly put online and some of these texts are periodically updated. Acrobat Reader is required to read the documents

To install it, download Acrobat Reader

Rare diseases
	List of rare diseases in alphabetical order December 2012
	- Prevalence or reported number of published cases listed in alphabetical order of disease November 2012 - n°1 - Diseases listed by decreasing prevalence or number of published cases November 2012 - n°2
	Disease Registries in Europe January 2013
	European collaborative research projects funded by DG Research and by E-Rare in the field of rare diseases & European clinical networks funded by DG Sanco and contributing to clinical research in the field of rare diseases* November 2010
Orphan Drugs
	Lists of medicinal products for rare diseases in Europe April 2013
Activity reports
	- Orphanet Activity Report, 2012 - Orphanet Activity Report, 2011 This document has been translated or adapted into French, Italian, Spanish and Polish - Partner countries Activity Reports: Portugal, Spain, Italy - Orphanet Activity Report, 2010 - Orphanet Activity Report, 2009
	- Orphanet 2012 Users Satisfaction Survey - Orphanet 2011 Users Satisfaction Survey - Orphanet 2010 Users Satisfaction Survey - OrphaNews Europe 2010 Reader Satisfaction Survey

Languages:

Orphanet version 4.9.17 - Last updated: 2013-05-17

The portal for rare diseases and orphan drugs

Orphanet index

Main menu :

Submenu :

Navigation tree :

Orphanet Reports Series

Rare diseases

Orphan Drugs

Activity reports

Orphanet

Footer:


ORPHANET USER SATISFACTION SURVEY 2012 Welcome to the Orphanet User Satisfaction Survey 2012. Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could you take 5 minutes of your time to answer the following questions? Answer the survey