Rare diseases are rare, but
rare disease patients are numerous

• • AUSTRALIA
  • New South Wales
  • SURRY HILLS
  • AGSA - The Association of Genetic Support of Australasia
  • More information
• • DENMARK
  • Jylland
  • HXJBJERG
  • The Danish Association for Dysmelia
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • BOULOGNE
  • ASSEDEA - Association d'Etude et d'Aide aux Enfants Amputés
  • More information
• • FRANCE
  • ILE-DE-FRANCE
  • PARIS
  • Association Denise LEGRIX
  • More information
• • FRANCE
  • PROVENCE-ALPES-COTE D'AZUR
  • VALREAS
  • A2IPRO - Association d'aide internationale aux patients et recherche orthopédique
  • More information
• • GREECE
  • ATTIKI
  • ATHENS
  • TO MELLON - Association of people with genetic disorders
  • More information
• • IRELAND
  • Leinster
  • DUBLIN
  • Inclusion Ireland
  • More information
• • ITALY
  • LOMBARDIA
  • MILANO
  • RAGGIUNGERE - Associazione Italiana per Bambini con Malformazioni agli Arti - ONLUS
  • More information
• • NETHERLANDS
  • Brabant
  • SINT OEDENRODE
  • Handvereniging
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• • POLAND
  • Poznan
  • ROKIETNICA
  • GEN - Association for Children with Genetic Disorders
  • More information
• • POLAND
  • Wroclaw
  • WROCLAW
  • WSPOLNIE - Association for children with rare genetic disorders and their families "Together"
  • More information
• • ROMANIA
  • BACAU
  • BACAU
  • Organizatia trebuie- Bacau
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• • ROMANIA
  • SALAJ
  • ZALAU
  • Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders
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• • SPAIN
  • Cataluña
  • EL PRAT DEL LLOBREGAT
  • Syndrom - organisation of patients with minor genetic alteration
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• • SWEDEN
  • Stockholms läns landsting
  • RIMBO
  • Swedish Dysmelia Association
  • More information
• • UNITED KINGDOM
  • Cheshire
  • LYMM
  • STEPS
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• • UNITED KINGDOM
  • Cornwall
  • HELSTON
  • REACH - The association for Children with Upper Limb Deficiency
  • More information