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Orphanet website Australia entry point

Orphanet Australia

National News

International News

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National Events


Orphanet international services
  • An inventory and classification of rare diseases
  • An encyclopaedia
  • A directory of services: clinics, laboratories, research projects, registries, clinical trials, patient organisations
  • An inventory of orphan drugs
  • Guidelines, reports
  • A newsletter
Access these services in:

Welcome to the Orphanet-Australia national website.

Here you will find information specific to Australia, such as news items, events and documents of national interest, along with updates of projects currently underway to collect Australian data to add to the Orphanet databases.


Australia is the newest partner to join the Orphanet global consortium and only the second outside of Europe. We have a lot of work ahead of us to add Australian content to the Orphanet directories.


If you would like to register your activity(ies) in the Orphanet directories, please go to the top left hand side of this page and click on “Register your activity”.


To access information on rare diseases, orphan drugs and expert services that are listed in Orphanet, please visit the main Orphanet portal (

Access Orphanet services in Australia and other countries in:
Legal noticeContact us — Last updated on: 10-06-13