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Orphanet website Canadian entry point

Orphanet Canada
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:: Governance

 

Orphanet-Canada

The Orphanet-Canada team is dedicated to providing data of the highest quality, and a platform for knowledge translation tools to the rare disease community.

 

National Team

The national team is in charge of ensuring the proper evolution of the project. It is composed of:

 

  • Dr. Micheil Innes, National Coordinator
  • Ms. Mayss Naccache, Project Manager
  • Dr. Paul Lasko, Representative of the CIHR Institute of Genetics
  • Dr. Durhane Wong-Rieger, Repesentative of the rare disease community

 

Scientific Advisory Board

The scientific advisory board (SAB) advises the national team on the possible evolution of the project. In addition, members of the SAB ensure the high quality of the data entered on Orphanet. The current composition of the Canadian SAB is:

 

  • Dr. Francois Bernier, University of Calgary
  • Dr. Kym Boycott, University of Ottawa
  • Dr. Bridget Fernandez, Memorial University
  • Dr. Jan Friedman, University of British Columbia
  • Dr. Anne Junker, University of British Columbia
  • Dr. Jacques Michaud, Université de Montréal
  • Dr. Millan Patel, University of British Columbia
  • Dr. Tracy Stockley, University of Toronto





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Legal noticeContact us — Last updated on: 17-03-29